I Am a Certain Thomas

My life has been blessed with the certainty of God’s existence. My brother was born multiply disabled with Rubella syndrome, (a warning to those who do not believe in immunizations.) He was almost deaf, blind, severely developmentally disabled and had a cleft palate, along with several other physical anomalies. My mom spent the first few months of his life sobbing on her bed. It was a confusing time for me as a child…my mom was not available to me, this new creature in my house mewed like a kitten for hours on end, and my dad did everything he could to not be home. Then, one sunny, warm day, my mom sat in the sun parlor on a rocking chair, rocking Curtis as he cried his kitten cry. Then a miracle happened…she was visited by the Holy Spirit. He/she came right on in, with a brightness that far surpassed the streaming sunlight, a brightness that would have been blinding were it not for the fact that it wasn’t. With a warmth of all encompassing love and joy. With a deep understanding that was somehow passed along to my mom. My mom stopped crying that day, and never again cried for my brother. Instead, he was raised with love; encouraged to do his best and accepted for what he could do, not what he couldn’t. My young life was so awesome after this experience! I have lived with that spirit in my heart; joyful and loving. Accepting and encouraging. Yet humble and in awe of all that life has to offer.
While that one experience changed my life, it was another experience that cemented my belief in the existence of a higher being. We traveled much during my childhood, and once we stayed atop a mountain, reveling in the views of the valley during the day and surrounded by pitch darkness at night. It was a time I valued having a campfire, sitting next to it with my poking stick, playing with the coals and listening to the gentle sounds of the night. Sleep came easily. I was awakened by an unbelievably loud noise and shaking of the earth, as though the whole mountain had exploded. The sound was so intense and unusual that my first thought was that it was the end of the world. In that instant, as I imagined “the end“ was near, an incredible sense of contentment and love immediately washed over me, with the joy of anticipation of a peaceful after-life. As silly as it sounds, I was actually disappointed to learn that the noise was just the sound of the thunder high in the mountains. What kind of person, especially a child, would have that thought????? I should have been frightened beyond belief, but I wasn’t. While my experience may lack scientific validity and meaning, it affected me deep in my soul and has deeply influenced the way I live my life.
Since that fateful night on the mountain, there have been a few more wisps of God in my life, the most notable being the unexplained healing of my daughter, Dinora’s deafness.
Many Christians heard the Gospel story of Thomas last Sunday. Thomas was one of Jesus’ disciples who would not believe in Jesus’ resurrection until he put his hand in Jesus’ side to feel his wounds. Since has come the term “Doubting Thomas”. I am Certain Thomas because I have so fortunately been given a rare sight into God’s existence, an existence of which I am sure and without doubt. It has been natural to live my life the way I have, and to do it with love and joy and acceptance. I’m not doing anything extraordinary, only what is natural given my knowledge. It is so much more meaningful for those who life similar lives, helping others, raising children, being peacemakers, donating material and monetary possessions, and loving others without qualification. They do so out of faith without proof, an amazing accomplishment for sure!
How would YOU live your life differently if you knew, for sure, of God’s existence?

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For more stories about my childhood, please, read my book. Here is a link:

https://itunes.apple.com/us/book/the-apple-tree/id538572206?mt=11

The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane

The Truth about Reactive Attachment Disorder

I witnessed a conversation with the sister of a boy who had been adopted at the age of 2 years old after being abused by his biological parents. As an adult “he has always been in trouble with the law and has been in jail.” Upon hearing this, a deep sorrow enveloped me. I have such empathy for that child, having three of my own adopted at a later age. It was with a sweet naiveté that I had them join our family, believing that love can cure all. Despite our family’s best efforts, love did NOT cure all. To pretend that it did does a disservice to all of those families living with similar children. As brightly as I may portray our family, (and they ARE wonderful children whom I have never regretted adopting,) they have serious disabilities when it comes to social norms. They have reactive attachment disorder.
To quote from Wikipedia, “RAD arises from a failure to form normal attachments to primary caregivers in early childhood. Such a failure could result from severe early experiences of neglect, abuse, abrupt separation from caregivers between the ages of six months and three years, frequent change of caregivers, or a lack of caregiver responsiveness to a child’s communicative efforts. The AACAP guidelines state that children with reactive attachment disorder are presumed to have grossly disturbed internal models for relating to others”
I have worked hard to form attachments to my three youngest children, and, while I like to think that I am a “normal” mom to them, I have to admit that they may have difficulty controlling lying without remorse, stealing just because they want something, or acting out if they do not “get their way”. My son who has autism and RAD has always acted out, kicking the occasional hole in the wall or breaking a window. Such behavior can be tolerated as a child, but when that child becomes a young adult, such behavior is considered “domestic abuse” and “vandalism”. My youngest daughter with RAD sometimes would see something she likes in Walmart and slip it into her pocket, thus necessitating a trip to the manager to give it back. I like to think that such life lessons have sunk in, but I cannot guarantee that, as a adult, she wouldn’t resume just taking things she wants. My kiddos with RAD are chronic liars. I can tell they are lying by the vast amount of details in their stories. They didn’t just lose a school book on the way home, a masked man followed them all the way home, hid out behind the maple tree, jumped out at them when a car drove by and stole their book to use as material to start their fire. Their stories, which they steadfastly stick with, are creative and imaginative and complete lies, and lying is a typical behavior of a child with RAD.
I am convinced that their brains are wired differently. As infants and toddlers, they were not able to form emotional attachments with caregivers in order to feel secure. When their little brains were forming, and those energy cells which would turn into concepts of how the world works, theirs determined they could not count on anyone but themselves. They can be self-centered, unfazed by conventional ideas of right and wrong, and often willing to do anything to get what they want.
Dealing with such children is a life long challenge. I have done a fair job of instilling right and wrong in my children, not because they really believe in right and wrong but because, by habit, that is how we behave in our family. Yes, they love me, but let another “parent” come by who offers them a kitten, and their love will quickly switch. (True story…my daughter almost went to live with a strange couple who tried to kidnap her by promising her a kitten!) Having the social skills to have real friends eludes them. RAD is a devastating disability which affects all aspects of their lives.
My heart goes out to all of those children out there who were unloved in their early years. It is NOT something they can just “get over”. I see people on tv who are arrested for this and that, and I hear their stories. 9 times out of 10, they were abused or unloved as children. I am convinced the loss of that initial security forever causes a permanent rift in the psyche that is contrary to the “norm”. To expect them not to be affected is naive.
Consequentially, a large percentage of people in prison were abused or neglected as young children, and I grieve their loss of “normal” lives, forever damned to seclusion from society as the result of their initial inability to form secure relationships in a loving family.
I apologize…this post is so unlike me, but I felt the need to discuss the issue.
Please join me in listening to my favorite song by clicking on the “Song by JJ Heller”. It is a song that addresses this very issue with a love that I feel in my heart. I hope you feel it also…

If you have time, please listen to my favorite song, “Love Me”, by JJ Heller. I have included the words. It never ceases to bring tears to my eyes…

Song by JJ Heller

“Love Me”

He cries in the corner where nobody sees
He’s the kid with the story no one would believe
He prays every night, “Dear God won’t you please
Could you send someone here who will love me?”

Who will love me for me
Not for what I have done or what I will become
Who will love me for me
‘Cause nobody has shown me what love
What love really means

Her office is shrinking a little each day
She’s the woman whose husband has run away
She’ll go to the gym after working today
Maybe if she was thinner
Then he would’ve stayed
And she says:

Who will love me for me?
Not for what I have done or what I will become
Who will love me for me?
‘Cause nobody has shown me what love, what love really means

He’s waiting to die as he sits all alone
He’s a man in a cell who regrets what he’s done
He utters a cry from the depths of his soul
“Oh Lord, forgive me, I want to go home”

Then he heard a voice somewhere deep inside
And it said
“I know you’ve murdered and I know you’ve lied
I have watched you suffer all of your life
And now that you’ll listen, I’ll tell you that I…”

I will love you for you
Not for what you have done or what you will become
I will love you for you
I will give you the love
The love that you never knew

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The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane
Authored by Linda Petersen
The link to the book:
https://www.createspace.com/5321986?ref=1147694&utm_id=6026

“All she does is screech and say No! No! No!”

 

The above description fit me perfectly.

Yes, me… perfectly.

Marie came to live with us at the age of 6.  She had been picked up off the street at 4 in the morning, barefoot, in her underwear, looking for food.  We took her in as an emergency foster placement because I knew American Sign Language and Marie was deaf. She looked like a wild animal…disheveled, matted hair, flaming eyes of distrust, so filthy everywhere that even an hour in the tub did not wash off all the grime.  Her teeth were dingy yellow, and her body was emaciated.  Being the “good” middle class mother that I was, I cleaned her as best I could and then I took her to buy some clothes.

In the store, she immediately disappeared.  I impulsively called her name, (as though she could hear me.)  When I finally found her, she was in the candy aisle, shoving candy bars into the pocket of her pants.  I screamed,  “No! No! No!”  She looked at me and ran in the other direction.  I finally tracked her down in the pet aisle, just as she was about to open the cage to the hamsters.  I screeched and said “No! No! No!”, and proceeded to grab her, pick her up, empty the candy bars in her pocket, and tote her back to the car without buying anything. If I thought this would teach her a lesson, it did not.  She was not used to buying anything, so she could not appreciate something she never had.

We ate out for lunch at McDonald’s.  Marie ate her sandwich and drank her milk and threw the wrapper and container on the floor.  No! No! No!

The next day I gave her a stern talking to (“signing to?)  and told her that we were going shopping for clothes and that she needed to stay with me. As though THAT was going to work!  As soon as we got into the mall, a place she obviously had never seen before, she skirted UP the DOWN escalator, laughing with glee.  Mortified, I screamed and said No! No! No!  and then watched in horror as she slid down the banister of the escalator.  Big scream! No! No! No!  Home we went. 

Once at home, she got an orange to eat.  She grabbed the butcher knife to cut it and I screamed and caught her hand just as it was about to demolish the orange. No! No! No!

The next day we were going to take a walk to the library.  She broke free from the grip I had on her hand, and ran across 4 lanes of traffic. Scream! No! No! No!

Later in the evening, while watching television, Marie climbed onto my husband’s lap, where she attempted to rub his “private parts” and kiss him.  SUPER BIG SCREECH!  No!  No! No! Oh!  This child was so “bad”!  WHAT was I going to do with her?

At the end of the week, I went to Marie’s school where she was part of a dance performance.  I was glad to be able to be there, as her birth mother had never been seen at the school before.  I watched with pride as she danced and twirled, often sneaking a peak at me to see if I was looking.  When the dance was over, I saw her talking (signing) with another student who commented that Marie had a new mom, and how did she like her? Marie looked over at me for a minute and crumpled her nose, telling her that all I ever do is scream and say No! No! No! I was shocked.  I had never thought of it before, but she was right!  I was so busy chasing and correcting her that it would seem like all I did was scold her.  And what was I scolding her for?  For what I, as a middle class mother, think is wrong.  I had never taken into account that Marie had been raised to do all of those things…to steal food, to take what she wanted from stores, to litter, to be sexually promiscuous (at the age of SIX!) and to have no worries about safety, thinking she was invincible.  This young child, who had lived on the streets and managed to survive without any parental care, just parental abuse…WAS invincible! She did what she needed to survive.

I was so embarrassed. Embarrassed because I was judging her by my standards and not stopping to think of what her standards were.  I vowed never to scream No! No! No! again, but to explain things in a loving manner to her.

We do not steal.  If you want something, I can probably buy it for you.

We do not run into streets with cars, use butcher knives, or slide down escalators.  It is not safe.

We do not just throw garbage on the ground, but in our family we pick it up and put it in a garbage can.

And, most of all, there is no need to make money by being “friendly to men”.   We have plenty of money so you don’t have to do that.  And it is not fair that you had to do that instead of just being a little girl. And you never have to do that again.

Marie did not change overnight, but each time she would fall back onto old habits such as stealing or being unsafe, I would lovingly explain why she no longer had to do that.  She had a family that loved her and it was our job to keep her safe.

Then there was the time when, walking in the mall with a soft drink in her hand, she unwrapped the straw and threw the paper on the ground. My eyes widened, and she laughed when she saw my reaction.  “I was just teasing you” she signed.  “I know I don’t litter in this family….” 

No more screaming from me…

 

 

Link to my book  The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane

Link to the Readers Digest review of my book:  http://www.rd.com/recommends/what-to-read-after-a-hurricane/