Archive for the ‘RAD’ Category

What to Learn from Baby Birds

 

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I drive slowly down my street to get home, which includes an area of trees, wild grasses and the occasional soda can or lost piece of paper. It is usually a non-committal drive, with my head swirling with ideas and concerns, not paying attention to the road at all. Yesterday was different. In between the trees was a mother bird, brown breast with brown-flecked wings. 6 inches in front of her was her tiny twin, obviously her offspring. The little one was walking away from her, turning to look back every second or so. Her beak seemed to say, “Go on, little one,” as the tiny bird inched farther along from her mom. It was such a sweet situation to observe!

Of course, all parents have gone through the same thing, pushing our little ones out of the nest. It is an 18, (or 19 or 20) year push. Lessons start early. An infant learns that he can depend on us to meet his needs, and trust that we are there for him. As a toddler develops, he tries to stretch the boundaries, asserting his own will, sometimes throwing a tantrum. As parents, we teach him how to handle his frustration differently, diverting tantrums into learning experiences. We give him lots of choices so that he feels in control, and lots of activities that he can do independently, giving him that sense of self he so desperately needs to develop. When it is time for school, we send them off like mother birds, nudging them along towards independence. We smile, wave, and hide the tears as he goes off to school for the first time, making it a great independent experiment!

By our own modeling, we teach him to be considerate of others, to share, to accept and to encourage. It is by demonstrating the “do unto others” concept that he learns not only his own value, but the value of all human life.

My oldest son, Francis, a manager for a large tech company, goes out of his way to hire individuals with disabilities. He often remarks it is easy to overlook their capabilities when presented with their physical impairments. As a teen, he used to build houses for Habitat for Humanity and teach Sunday School. As a teen, my daughter, Dinora, raised money for the development of a soup kitchen in her native Guatemala, even visiting and working there herself when she graduated from college. Even now, as a successful make-up artist, she regularly sends them money. When younger, Steven, with the weight of all of his own problems, looked kindly upon others, volunteering to help people carry groceries or donating his precious change to someone in need. (I will never forget traveling the subway in Boston and he kept asking me for change to give to all of the musicians and beggars down in the tunnels. He was devastated when I ran out of money.) Angel, who currently works 2 jobs to pay for his car, continues to make time to work at a camp for children who are blind where he has volunteered since he was 14. And Marie, who has so many issues herself, takes pride in leading a young schoolmate with Down Syndrom to get his daily medication from the nurse. She is gentle and kind and considerate of his special needs.

As that mother bird nudged her birdling towards independence, we need to nudge our own children to care about others. The future of Peace depends upon it.

 

The Words Every Adoptive Mom Longs to Hear…

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Like most other adoptive parents, I adopted children because I, selfishly, wanted children. (My theory was if I had children to care for, I really didn’t have a lot of extra time to clean the house. I would rather care for a child than mop the floor…) An adoptive parent should never think their child who is adopted is beholden to them. The child didn’t choose to be born into their circumstances, and they certainly didn’t ask to be adopted. And I have had more than my share of emotionally unstable children, (aren’t all teenagers unstable anyway?) and never expected them to be happy about my choice to adopt them, (or at least not to express that feeling.)

But I was wrong. I went to Marie’s award ceremony at school today. Most parents didn’t go, it was during the day and I’m sure it was hard for them to get off work. It was hard for me to get off work, too, and I will have to work on the weekend to make up for it, but I went because I wanted to support Marie, who had been doing phenomenally in school. Marie didn’t know I was coming, and she was sooooooooo excited! She ran over, gave me a big, wet, on the lips kiss, and put her head on my shoulder while she hugged me tightly. She was genuinely happy to see me, (and not just because she knew I would take her out for ice cream after the ceremony.) She dragged me to all of her friends, and announced to them in American Sign Language something that made my heart stop and tears come to my eyes. She said, “This is my mom. She wasn’t my real mom when she adopted me when I was 7 years old, and at first I didn’t like her, but she made me feel safe and she gave me food and clothes. Now I love her very much and she is my real mom because now I have a happy life and I know I will have a happy future. And someday I will have babies and make her a grandmother!” I am her mom, indeed!

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To read about our traumatic early years together, please purchase my book, The Apple Tree: Raising 5 Kids with Disabilities and Remaining Sane on Amazon.

Church is Like a Hospital

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Sitting in church today, grumpy and petrified for Steven’s future, I barely listened to the sermon. During my mind meanderings, I heard Pastor suggest we all think of church as a hospital for those with broken peace. Yes, that is me! Broken peace! I started listening more closely, and he was speaking to ME! To paraphrase the sermon, church welcomes everyone looking for peace. Everyone is living their lives often faced with many challenges, tragedies, illnesses, possible prejudices against them and sadness. As much as I would like to think so, life is not all daisies and sunshine. Steven’s life sucks, and will continue to suck. How/why that happened or why God would “let” that happen is of no consequence. It happened. It is.

My peace was restored when I realized that in the scheme of this whole eternal universe, the time spent on earth is only a drop in the ocean. Because the existence of “God”, (not a Jewish God or a Catholic God or even a Muslim God,) just GOD has been confirmed in my life; it has been proven to me that He/She is there. Waiting. For me and for Shaun and for everyone else, especially those who are suffering. While life may be challenging and emotional right now, it won’t be like that forever. He/She will be there forever, welcoming me.

So, for today at least, my peace was repaired in church.

I will see if it can last til next Sunday!

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To read the proof of God’s existence, please purchase my book on Amazon.

“If You Look for the Goodness in Your Children, Good Things Will Happen”

My dear friends and readers,

Please excuse this commercial interruption of your regular reading.

If you enjoy reading my blog, you will LOVE reading my book!


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The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane
Authored by Linda Petersen

(Review by Dawn Raffel from Readers Digest:)
Her story begins not with her children but with her own childhood spent traveling the country in the backseat of her parents’ car (her perpetually restless dad had post-traumatic stress disorder from WWII), often with very little money and few provisions. Where someone else might have seen deprivation and isolation, Petersen viewed her unusual childhood with a sense of wonder and gratitude. After marrying young and giving birth to a son who was legally blind (and who went on to earn a PhD on full scholarship), Petersen and her husband adopted four more special needs children and fostered many others. Each child has their own special story about overcoming tremendous physical and emotional difficulties in order to be able to succeed and enjoy life. Her honesty, wit, and terrific storytelling make this a book you want to read rather than one you feel you should read.

The link to the book:
https://www.createspace.com/5321986?ref=1147694&utm_id=6026

Thanks sooooo much! Happy reading!

We Had a Rockin’ New Years Eve with the Three Stooges!

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Celebrating New Year’s Eve with the children has always been a challenge. They have different tastes and interests. It is especially difficult with Marie because she is deaf. Movies are okay for her with closed captioning, but she only has a first grade reading level, so most of the words are beyond her understanding.

On Christmas day hubby hit the jackpot. Our oldest son, Francis, bought him the entire collection of the Three Stooges! We took advantage of this thoughtful gift on New Year’s Eve. The whole family sat around the television, gourmet pizza in hand, and apple juice as our simulated alcoholic drink. And we watched the Three Stooges. For HOURS. From 2014 to 2015. Their slapstick humor, so completely socially inappropriate now, was so funny that we doubled over with laughter and tears ran down our cheeks. THE WHOLE FAMILY! ESPECIALLY MARIE!!!!! Near the end of the evening, Marie, who had been sitting on the couch next to her dad, leaned over and put her head on his shoulder and her arms around his robust body. Almost afraid to move lest he scare her away, he gently put his arm around her, and looked at me and smiled. This child, who has a serious attachment disorder and from whom affection has been doled out in minuscule doses, was cuddling with her dad!

Afterwards, when we were all laughed out and the morning was near, one by one we reluctantly sauntered off to bed. While hubby and I were cuddling before allowing sleep to take over, hubby began to cry. “Did you see how Marie cuddled with me?” he asked. “It was the best night of my life.”

Yes. Yes it was!

She LOVES me! She really LOVES me! (not…)

Anyone who is raising a child with reactive attachment disorder knows that love and caring is not always reciprocated. In fact, often the children are so hostile that we wonder what we are doing wrong and what have we gotten ourselves into? Raising Marie has been like that. Coming to us from living with a mom who allowed unspeakable abuse, Marie was not ready to love anyone. Not letting me touch her, in fact, shoving me away or hitting me if I tried, it took six months for me to reason with her that I needed to have a way to show her that I loved her. She graciously allowed us to fist bump. Our fists met with a minimal amount of touching as I signed “I love you” in American Sign Language with the other hand. As a mom, I desperately needed to be able to share my love with her, whether she accepted it or not.

Through the years, she allowed me to hug her. I would put all of my love forth in that hug, deep, sincere, emotional… Whether she actually got any of that through osmosis, or whether she just tolerated my hug, I never knew. But I felt better doing something to demonstrate my love.

When she was about 14 years old, we were at a carnival and she spotted a photo booth. She had always been fascinated with these contraptions, and she grabbed me by the hand and pulled me over to it, sticking her other hand out for the money to put in it. As we sat inside the booth and the camera clicked, a miraculous thing happened…she turned and KISSED me on the cheek. Whether it was her excitement over the photo booth, (and the demonstration photos on the side of people kissing,) or whether she really felt an emotion and wanted to kiss me, I’ll never know. But I choose the latter. In the picture below, you can see the emotion on my face as she does so. After SEVEN long years!

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Well, a couple of years have gone by, and she and I regularly hug and kiss (she offers me her cheek.) Not much had changed in that department. UNTIL I went to the open house at her school. She saw me walking down the corridor while she was standing with a group of friends. She came galloping towards me, wrapped her arms around me with such force that I almost fell over, and gave me a huge kiss ON THE LIPS! Then she proudly told everyone that I was her mom. SHE LOVES ME! SHE REALLY LOVES ME!

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The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane
Authored by Linda Petersen
The link to the book:
https://www.createspace.com/5321986?ref=1147694&utm_id=6026

As The Sun Set in the Warm September Sky

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It was 95 degrees today! On the 6th of September! My daughter, Marie, and I spent most of the day at the movies where it was cool and comfy, munching on buttered popcorn and drinking Diet Coke. Coming home at 5:30 to stifling heat, we decided to take a swim in the pond behind our house. I had not been swimming in the lake in years. (My children, now teenagers and young adults, had lost interest in beach activities, onto other teenage endeavors that don’t involve wet bathing suits, towels, and sand between their toes.) As I stepped into the water, it was refreshingly wonderful! With Marie in tow, we each sat in a tube and paddled out to the middle of the lake. The cool water was the perfect solution for the muggy hot weather. We chatted for a while, (in sign language,) and Marie told me of the importance of wearing socks with her sneakers or her feet stink and people don’t want to come near her. She told me she enjoyed woodworking class which she had just begun, and she planned to build a house with what she was learning. We talked about teachers and boys and what her hopes and dreams are for when she “was older.” (She wants to work petting dogs and cats.)
As the conversation wore down, we both relaxed in the water, just floating and enjoying the moment. Marie took my hand in hers, a move she would have never done all those years ago when she came to live with us and would have screamed if I even touched her. I felt we were bonding anew. She shared her dreams, and now she was sharing her love. We floated in silence, watching the seagulls swoop down to get fish, and the geese fighting with them for air space. It seemed they were playing a follow the leader game, flying side by side, and then swooping into the water, geese honks and seagull squawks. We watched as the turtles poked their heads above the water. When she was younger, Marie would have taken off to joyfully capture them. But today she just floated in silence with me. More mature. More content with herself.
The time seemed timeless; we could float there all day, water lapping at our legs. But the setting sun belied the late time of day. Above the trees beautiful colors arched; pinks, oranges, purples. It was peaceful. It was relaxing. It was joyful. As we sat there in the water on our tubes holding hands…

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If you are interested in learning more about my family, here is link to my book:
https://itunes.apple.com/us/book/the-apple-tree/id538572206?mt=11
The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane

I’ve Never Been So Happy to be Sick!!!!

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Just like everyone else’s, my life sucks from time to time! This past month has been one catastrophe after another. Marie, my daughter who is deaf, had again been hospitalized due to a dangerous PTSD episode. When in a dissociative state, she downed staples in an effort to kill herself. Ever the optimist, I was hoping against hope that her memories of severe abuse would begin to soften, maybe even heal. Alas, not yet…this will be a lifelong battle.

My son Angel, who had just begun to drive, was involved in a rear end collision. While slowing down for a red light, KAPOWEE! another car hit him in the rear, pushing him into the truck in front of him. He was briefly hospitalized for whiplash, but the emotional impact was even worse. Sleeping is a luxury he no longer enjoys; wild fears and thoughts flood his already befuddled mind. He has stopped doing the things he used to do, clearly depressed that his means of freedom no longer sits in the driveway. Through no fault of his own, his major pride and joy, his ability to drive around and help others all day, has been destroyed. The car, safe and well running, was bought new in 2008. The insurance company only paid the Blue Book value of $4200. Because we do not have additional financial means, trying to find a car for such a small amount of money has been a real challenge, and every day that goes by without a car for Angel pushes him further and further into depression.

Marie’s recent birthday party was ruined when Steven “acted up”…having a full fledge outburst. (He has a severe sensory deficit with which he can not tolerate crowds or things not in his regular schedule. I should have had the foresight to arrange for him to be elsewhere.) Steven punched a hole in the wall and swore obscene obscene obscenities, (I know most obscene obscenities, but he came up with a few that were even more hard core.) As he stormed off down the street to settle himself down, the damage had already been done. Mortified at this behavior that most of our guests had never seen, everyone left, making a bee line for their cars, children in tow. Marie, who in her deafness had not heard the commotion, had been fishing on the dock behind our house. When she turned around, everyone was gone! She was quizzical at first, but not being a real “people person”, she took it in stride, especially because everyone had left their gifts for her!

My own work has been more difficult. The agency has hired a public relations person, and suddenly referrals have been flooding in. With an exponentially increased workload, putting in 50 hours a week has not been uncommon. What HAS been uncommon is the wrenching ache that developed in the pit of my stomach. Food would spew out of my stomach a half hour after I’d eaten. I felt awful, but I trekked on, saltine crackers and ginger ale bottle in tow. All my life, stress did not bother me. I could handle anything! No problem! Que sera sera! A little stress was not going to deter me from my job duties! (Like a mailman, neither ran, nor snow nor dark of night would keep me from my mission.) But as the stomach ache dragged on, my enthusiasm waned. I actually became depressed! My life, as I knew it, was over… or so I thought…..

After two weeks of eating nothing but chicken rice soup and saltines, I dragged my depressed little body to the walk in clinic. Taking one look at me, they sent me to the hospital emergency room where an intravenous was started to alleviate my dehydration. Laying there, I watched several bags of liquid force fed into the little vein in my hand. They did many tests, some to which I may have objected but I was too weak to stand my ground. Lo and behold, I was really sick! It wasn’t stress! It was salmonella poisoning from an egg breakfast at a local diner two weeks previously! Although I lay there on the gurney still feeling ill, happiness filled my heart. I was sick, not stressed! Life would return to “normal”, including all of the small tragedies and heartbreaks and problems associated with having five children with disabilities. But I could handle it! Life would go on!

The Truth about Reactive Attachment Disorder

I witnessed a conversation with the sister of a boy who had been adopted at the age of 2 years old after being abused by his biological parents. As an adult “he has always been in trouble with the law and has been in jail.” Upon hearing this, a deep sorrow enveloped me. I have such empathy for that child, having three of my own adopted at a later age. It was with a sweet naiveté that I had them join our family, believing that love can cure all. Despite our family’s best efforts, love did NOT cure all. To pretend that it did does a disservice to all of those families living with similar children. As brightly as I may portray our family, (and they ARE wonderful children whom I have never regretted adopting,) they have serious disabilities when it comes to social norms. They have reactive attachment disorder.
To quote from Wikipedia, “RAD arises from a failure to form normal attachments to primary caregivers in early childhood. Such a failure could result from severe early experiences of neglect, abuse, abrupt separation from caregivers between the ages of six months and three years, frequent change of caregivers, or a lack of caregiver responsiveness to a child’s communicative efforts. The AACAP guidelines state that children with reactive attachment disorder are presumed to have grossly disturbed internal models for relating to others”
I have worked hard to form attachments to my three youngest children, and, while I like to think that I am a “normal” mom to them, I have to admit that they may have difficulty controlling lying without remorse, stealing just because they want something, or acting out if they do not “get their way”. My son who has autism and RAD has always acted out, kicking the occasional hole in the wall or breaking a window. Such behavior can be tolerated as a child, but when that child becomes a young adult, such behavior is considered “domestic abuse” and “vandalism”. My youngest daughter with RAD sometimes would see something she likes in Walmart and slip it into her pocket, thus necessitating a trip to the manager to give it back. I like to think that such life lessons have sunk in, but I cannot guarantee that, as a adult, she wouldn’t resume just taking things she wants. My kiddos with RAD are chronic liars. I can tell they are lying by the vast amount of details in their stories. They didn’t just lose a school book on the way home, a masked man followed them all the way home, hid out behind the maple tree, jumped out at them when a car drove by and stole their book to use as material to start their fire. Their stories, which they steadfastly stick with, are creative and imaginative and complete lies, and lying is a typical behavior of a child with RAD.
I am convinced that their brains are wired differently. As infants and toddlers, they were not able to form emotional attachments with caregivers in order to feel secure. When their little brains were forming, and those energy cells which would turn into concepts of how the world works, theirs determined they could not count on anyone but themselves. They can be self-centered, unfazed by conventional ideas of right and wrong, and often willing to do anything to get what they want.
Dealing with such children is a life long challenge. I have done a fair job of instilling right and wrong in my children, not because they really believe in right and wrong but because, by habit, that is how we behave in our family. Yes, they love me, but let another “parent” come by who offers them a kitten, and their love will quickly switch. (True story…my daughter almost went to live with a strange couple who tried to kidnap her by promising her a kitten!) Having the social skills to have real friends eludes them. RAD is a devastating disability which affects all aspects of their lives.
My heart goes out to all of those children out there who were unloved in their early years. It is NOT something they can just “get over”. I see people on tv who are arrested for this and that, and I hear their stories. 9 times out of 10, they were abused or unloved as children. I am convinced the loss of that initial security forever causes a permanent rift in the psyche that is contrary to the “norm”. To expect them not to be affected is naive.
Consequentially, a large percentage of people in prison were abused or neglected as young children, and I grieve their loss of “normal” lives, forever damned to seclusion from society as the result of their initial inability to form secure relationships in a loving family.
I apologize…this post is so unlike me, but I felt the need to discuss the issue.
Please join me in listening to my favorite song by clicking on the “Song by JJ Heller”. It is a song that addresses this very issue with a love that I feel in my heart. I hope you feel it also…

If you have time, please listen to my favorite song, “Love Me”, by JJ Heller. I have included the words. It never ceases to bring tears to my eyes…

Song by JJ Heller

“Love Me”

He cries in the corner where nobody sees
He’s the kid with the story no one would believe
He prays every night, “Dear God won’t you please
Could you send someone here who will love me?”

Who will love me for me
Not for what I have done or what I will become
Who will love me for me
‘Cause nobody has shown me what love
What love really means

Her office is shrinking a little each day
She’s the woman whose husband has run away
She’ll go to the gym after working today
Maybe if she was thinner
Then he would’ve stayed
And she says:

Who will love me for me?
Not for what I have done or what I will become
Who will love me for me?
‘Cause nobody has shown me what love, what love really means

He’s waiting to die as he sits all alone
He’s a man in a cell who regrets what he’s done
He utters a cry from the depths of his soul
“Oh Lord, forgive me, I want to go home”

Then he heard a voice somewhere deep inside
And it said
“I know you’ve murdered and I know you’ve lied
I have watched you suffer all of your life
And now that you’ll listen, I’ll tell you that I…”

I will love you for you
Not for what you have done or what you will become
I will love you for you
I will give you the love
The love that you never knew

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The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane
Authored by Linda Petersen
The link to the book:
https://www.createspace.com/5321986?ref=1147694&utm_id=6026

For Sentimental, Sappy Souls

On Columbus Day, my husband and I spent a wonderful day just driving around and enjoying the autumn scenery. I don’t know about you, but I seem to have an unusual sensitivity to the beauty in nature, and was once again overwhelmed by the beauty of the bright white and yellow streaks of sun streaming down through the white puffy clouds. Such a sight always encourages me as if reinforcing the fact that yes, there are clouds, and yes there may be rain, but that sun is still up there in the sky, overseeing it all, just waiting to break through and make things better. As an added visual treat, the sun shone so brightly on the tapestry of peak autumn leaves: oranges, reds and yellows, that I felt a need to wear my sunglasses, but with them on I would not be able to fully appreciate the effect of the over-the-top, gasp inducing colors. No photo, piece of artwork or beautifully sung song could have replicated the intensity of happiness that brought tears to my eyes and joy to my heart.
My husband and I sat, holding hands as he drove. There was no need to say anything. We were at peace, pleased to have such a respite after a hectic week of raising children and dealing with problems. We were in our own beautiful bubble, cell phones turned off so as not to ruin the interlude. It was a wonderful day!
Upon pulling into the driveway of our home, I spotted the two small maple trees which Marie had planted a few years ago. She had excitedly dug them up when they were fragile saplings with broken branches, and planted one on each side of the driveway. She had added gravel at the base of each, and attached a tall, straight, thin stick to keep them growing upright. I don’t know why I hadn’t noticed them before. I had NOTICED them, of course, but I had never really SEEN them. They had grown to be about four feet tall, straight and strong. My breath stuck in my throat as the brilliant, bright yellow leaves danced happily in the gentle breeze. They were a growing metaphor for my daughter, blossoming and beautiful and holding the promise of a bright future in their little yellow leaves. Despite once being fragile and broken, they would grow tall and amazing and fit perfectly in this world, reassuring me that my daughter, who was also once fragile and broken, would grow tall and amazing and fit perfectly in this world.

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