I led a very untraditional lifestyle when I was growing up. My father, whom I later realized was schizophrenic, had the wanderlust to travel, which our family did for about 6 months of the year. He would remove me out of school and we would take off for various areas of the country, living in our Volkswagen van. ( Although I am sure that today’s public education system would not allow it, somehow I think my father would have taken me out anyway.)
It was quite an adventure for a child like me. I have a vivid memory of cracking eggs in a big, black, iron frying pan over a campfire in the Badlands in South Dakota. The rocks the pan was on were not sturdy, and the pan fell sideways with the eggs slowly leaking out onto the pine needles on the ground. (Clumsy then…still clumsy.) I remember traveling in southern Georgia, driving for miles watching red clay cover everything…the houses, the cars, and even the clothes hanging on the lines. It was at the beginning of the civil rights movement, and I was uneducated in this area, (probably because I didn’t go to school!) The whole concept of a bathroom for “whites only” was a shock to me. Did that mean that only people wearing white clothes could use it? (I’m picturing nurses, dentists, pharmacists…) I couldn’t use it because I had on my only pair of pants, jeans, and a multi-colored t-shirt. But I had to go to the bathroom baaaaad, where would I go? Behind the bushes? How degrading! My misunderstanding of this concept is now a slight reminder of what it felt like be African American in the 60’s. I also have the memory of a bear at Yellowstone Park coming onto our campsite to eat our dinner as we all huddled in the car. My brother, Curtis, was upset because he had left a package of Cracker Jacks on the picnic table. We had to restrain him from leaping out of the car to get it. Afterwards, I was not so keen to sit by the campfire…
But most of all, I remember my constant companion; Curtis. He was four years younger than I was, and he had been born with Rubella Syndrome; developmentally delayed, cleft palate, legally blind, and severely hearing impaired. He was my buddy. Because my dad was extremely frugal, (ie obsessive compulsive disorder frugal,) I did not have many toys to play with. So, in addition to reading a lot, I played in our surroundings with my brother. I have a memory of sitting by a stream, sun shining down on the water through the leaves on the trees. Curtis was happily splashing about in the shallow water. I was looking for rocks that somewhat resembled people. (They were no Barbie dolls, but some kind of looked like Alfred Hitchcock and Potato Head.) All of a sudden I heard a whoooooosh! Curtis had ventured too far into the water and the current started to carry him downstream! Fortunately, I had long, slim legs (in those days,) and with a few strides, I picked him up by the back of his pants. He was laughing heartily. To him it was a real adventure. Like the poor person’s substitute for a ride at Disneyland!
We actually had a lovely childhood together. I had to carry him everywhere because he could not walk sturdily. Carrying him was just a natural way of life for me. I don’t know why, but I never thought to be embarrassed by him, (although his screeching and attempt at speech WAS pretty scary). I never ever thought of him as a burden. He was just my buddy, Curtis.

My parents rarely took pictures. (The money thing again…) But I do remember ONE picture. It was a picture of me and Curtis, standing in front of Mount Rushmore. I was characteristically giving him a piggy back ride. The photo shows Curtis, looking over my shoulder, eyes squinted shut by the glare of the sun. I was wearing a stupid, treasured, red velvet derby hat, (you know, like jockeys wear.) As the dead presidents loomed behind us, I gave my characteristically stupid, toothy grin, (like all children do when their parents ask them to smile.) And on that day, I first heard the song from Neil Diamond which fit my sentiments exactly: “He Ain’t Heavy, He’s My Brother”. It was a powerful moment to think that someone had put into words what my life was like.
I was so very lucky to have been raised the way I was because it formed my personality, my temperament, and my compassion for others. I personally cannot take credit for the way I live now, fostering and adopting children. I am not selfless, nor amazing, nor wonderful, nor any of the other adjectives readers have used to describe me. I am simply living my life the way I was raised and it is a wonderful life!
****
Link to my book The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane
He Ain’t Heavy, He’s My Brother Lyrics
The road is long
With many a winding turn
That leads us to who knows where
Who knows where
But I’m strong
Strong enough to carry him
He ain’t heavy,he’s my brother
So on we go
His welfare is of my concern
No burden is he to bear
We’ll get there
For I know
He would not encumber me
He ain’t heavy, he’s my brother
If I’m laden at all
I’m laden with sadness
That everyone’s heart
Isn’t filled with the gladness
Of love for one another
It’s a long, long road
From which there is no return
While we’re on the way to there
Why not share
And the load
Doesn’t weigh me down at all
He ain’t heavy he’s my brother
He’s my brother
He ain’t heavy, he’s my brother
He ain’t heavy, he’s my brother
written by Bobby Scott and Bob Russell
performed by Neil Diamond in 1970
******
Link to the Readers Digest review of my book: http://www.rd.com/recommends/what-to-read-after-a-hurricane/