Differences

 

Occasionally with my morning tea I play on the website Game Duel. This international site has all of the regular games for free; solitaire, Crazy 8s, Yahtzee and so forth. After waking up, I enjoy playing against other players as a semi-introduction to the social world, (before I actually have to be wide awake and sociable in the real world.) This morning, while playing Crazy 8s, my other two opponents were texting in Russian. Although they were surely texting trivialities such as “good morning”, “here comes a bad card”, and “nah nah nah nah nah nah”, my heart was immediately struck with fear. In this era of terrorism, and growing up in an age when the Russians were our enemy, I was irrationally frightened they were planning an attack on the US or something else negative. Worse yet, that they could tell who I was through my computer.

Prejudicial.

When driving through the Deep South in the early 60s, my father would take Route 302 instead of the highway, (which may or may not have been built at that time.) As a child, I was frightened at the attitude towards African Americans. There were “white” and “colored” signs above the bathroom doors, with a significant disparity between the two. I heard the local folk call the African Americans the “n” word, and talk down to them. Their attitude frightened me, and I could not understand why they would do such a thing.

Prejudicial.

When my brother was born with Rubella Syndrome with a massive cleft palate, developmental delay, hearing impairment and vision impairment, my four-year-old little self loved him to pieces. Not being familiar with all of the intricacies of babies, he looked just fine to me. As we grew, other people’s reactions to him upset me. They often recoiled as though in horror and I would wonder why. Other children called him the “r” word and point and laugh. Through the eyes of my love for him, I didn’t see anything funny about the situation. His mouth may have looked a little funny, but didn’t they see the glorious gleam in his blue eyes?

Prejudicial.

When my great aunts would visit from Michigan, they would sleep in my room on the big double bed and I would sleep in a cot in my parent’s room. They were elderly, but still had a lot of spunk. My mom would take them dancing at the senior center where they would dance with gusto to their favorite line dances. They were very affectionate women with my family and between themselves. I thought nothing of their holding hands while watching tv, but others talked in hushed whispers. It wasn’t until I was an adult that I realized that Aunt Mina and Aunt Betty were gay, and that they had to hide their “gayness” in the confines of our home because others in the community wouldn’t understand, thinking there was something wrong with them.

Prejudicial.

Fast forward to our adoption of Marie at the age of 7, who was deaf and had been severely abused. She was a wild one; untamed, disrespectful, destructive, stealing things at the store, and begging from strangers when given the chance. (I learned to stay by her side and intervene before she even got close to anyone unfamiliar.) She refused to wear girl clothes, insisting on wearing boy’s underwear, pants, shirt, shoes and socks. (This caused a slight problem at McDermott Pool, which had a strict “no shirt” policy 15 years ago. Because she insisted on wearing boy’s swimwear, she obviously needed a shirt!) She would tell everyone, (in sign language,) that she was my son. At her annual check up at the age of 8, she tearfully asked her pediatrician if he could sew a penis on her. As a very sympathetic doctor, he understood that her needs were different than other children’s. He gently took slim her hands into his big ones, and looked into her deep blue eyes, (which darted back and forth between his face and myself, who was interpreting what he said in ASL for Marie.) He said that it was possible to sew a penis on her, but that she had to wait until she was fully grown to make that decision. Relieved that at least it was a possibility in the future, she was consoled. In the meantime, she could continue to be a boy without the extra attachment. Since that time, with intense counseling, she confessed she only wants to be a boy was so that men wouldn’t hurt her. She continues to dress and profess to be male, but is not interested in getting the proper anatomical equipment. Her choice of male attire, now plumply filled out in the bust area, has been cause for concern for many. For her, and many other actual transsexuals, life is met with stares and disapproval.

Prejudicial.

My ever-optimistic brain would like to think that people have such negative reactions for the same reason I was fearful of my Russian opponents this morning; because they don’t know any better. If only everyone would just accept people as they are; to be valued and respected for their uniqueness….

 

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‘Twas Once a Child

 

My daughter, Marie, has reached adulthood, having graduated from a residential program that had services for both her deafness and her mental health issues. This is the age of worry for any parent, especially one with so many challenges.

When she came to live with us at the age of seven and we were told she was “just deaf”, we could not have properly prepared ourselves for the roller coaster ride of a life she, and we, would have. She was a wild child, blonde hair askew, eyes angry, mouth so hungry she would hoard food under her mattress. She was very angry she had been removed from her mother, (for doing unspeakable acts which shall remain unspoken.) Despite providing her with a healthy, well cared for childhood, Marie’s disposition had been preformed. She would lie, steal, beg strangers for money, and reject all of our efforts to parent her. A hug and a kiss would throw her into a fury. Discussing our parenting situation and our need to show her love, she reluctantly let us “fist bump” her. Years later she apologized and told us her birth mom made her promise not to hug or kiss us, and that we really wouldn’t be her parents. It took us many years of fist bumps before she would accept a hug, and many years more before she would let us kiss her. She is now a young adult, and freely hugs and kisses us if the mood suits her. She shows genuine affection and appreciation, the highest reward any parent could expect from an original wild child.

Although Marie can be very capable, she has been unable to live in a non-structured setting because of her unstable bouts with Post Traumatic Stress Disorder. For those unfamiliar with this life altering condition, it is experiencing horrific memories so acutely that one becomes “in the moment” of prior abuse, crazed eyes staring back as though at her accusers, ready to defend herself with flailing arms and legs and gnashing teeth. An ambulance ride to the hospital and sedation was the only thing that could bring her out of her experience. It has always been especially tear inducing, (for me,) when at the hospital, with her hand in restraints, she would wake from the sedation, look around, and finger spell (ASL) asking me where she was, having had no memory of the event. Next she would say her throat hurts, (from screaming, no doubt,) and ask for a Popsicle, which she would skillfully eat while still in restraints.

Marie is now formally an adult. A lot of planning has gone into finding an adult home for her, one that would be staffed 24 hours. My calling all possible supported living programs in our state began about a year and a half ago. With the dual diagnosis of deafness and mental illness, no program would accept her. Many of the programs who may have had prior experience in working with her, never even returned my calls.

After working closely with the Department of Developmental Disabilities, whose frustration and efforts equaled mine; they were able to establish a placement for her that has far surpassed our expectations through a program used to dealing with adults with more severe developmental disabilities. They had no prior experience with a young adult with both of Marie’s difficulties, but once they learned there was someone in such need, they stepped right up and took on the challenge.

Marie now lives in a cute, little house on a nice residential street. As described by those on the show “House Hunters”, this one would be described at “Retro”, with bright yellow tile, a front door carved with circles, and a front porch with wrought iron table and chairs. Neighbors bring over cookies and wave to each other on the street. There are three bedrooms in the house, and she is hoping that a housemate will join her soon. She insists that her house buddy like to watch scary movies, (VERY scary movies,) and, most of all, must not be allergic to pets. Marie has a guinea pig that is usually perched on her chest with both of her hands gently stroking the lucky animal, a calming activity that works for both her and Oreo, who is black with a white center, of course.

Marie is thrilled to be able to go shopping for food she likes, not necessarily the food I have cooked for her. She is no longer in school, so work activities will happily replace the classes with which she used to have such frustration. She has directly chosen the things that she would like to do during the day, throwing out suggestions I would have thought unobtainable.

Marie has always loved to ride horses but gets frustrated that when we go, her horse needs to be tethered to another due to her deafness. She recently began an activity at a horse farm that facilitates riding for children with disabilities. For such children, the riding is therapeutic, but the horse walks slowly. Marie’s job is going to be to trot the horses at the end of the day because the horses themselves get bored walking slowly. What better job than that for someone who loves to ride horses?

Marie’s penchant for all animals has earned her a spot working with “disenfranchised” cats and kittens, that is, homeless felines. She will clean the cages, feed them, and then “show them off” like Vanna White highlights the letters on “Wheel of Fortune”. Oreo will be jealous, I’m sure, so Marie will have to wash the cat scent off before she returns home.

At this point in her life, Marie is feeling very good about herself and her care for others. She has signed up for a Meals on Wheels route, and all of those hugs she didn’t give in her early years will undoubtedly be dispensed ten times over among her lunch recipients.

As a mom with a daughter for whom life experiences didn’t start out well, I am so thrilled that in her adult life she will be doing the things she enjoys with people who will support, encourage and appreciate her. What more could any parent ask for?

 

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To read our story raising Marie and her four siblings, please purchase my book, The Apple Tree:  Raising 5 Kids with Disabilities and Remaining Sane. It is on sale on Amazon and Barnes and Noble. Thank you for your support!

His or Her Graduation

 

 

My youngest child, Marie, will be graduating from high school at the American School for the Deaf in Hartford this week. When she came to live with us at the age of 7, her wild child behavior was so bad I never thought either of us would live to see this day. But here it is! She surprised me, this child of mine who prefers to look and dress like a boy, for which with her abuse history, her justification has always been “if you look like a girl, someone will hurt you.” She has chosen to wear a dress for graduation, the very same dress she wore uncomfortably as a junior bridesmaid at her sister’s wedding. Even though that was several years ago, she is determined to squeeze every ounce of flesh into the dress. It is fortunate she will also be wearing a graduation gown or I am sure something would get flashed somewhere!

Although she insisted on wearing her work boots with the dress, I convinced her to wear something “less hot because the day will be warm out.” She agreed to a slide on sandal, and I have chosen a pair that could be used by any sex, (once you take the bows off.)

But my choice of shoe for her makes me wonder if I have not totally accepted her for the person she feels to be. I know many parents would have great difficulty understanding if their son or daughter were gay or transgendered. Marie insisted for many years that she was a boy “inside” and even begged her pediatrician to sew a penis on her. He was very sweet with her, and suggested she wait until she was a teenager before discussing that issue again. After much counseling, it was determined she felt that way only out of desire to be safe, to no longer be abused as she had when she was a young child. Being a boy is still a façade she wishes to project, but not one she innately embraces.

Which brings us to the most recent lifelong dilemma; whether she was going to love boys or girls, a discussion SHE initiated one day. She went back and forth on the pros and cons of both. Bravely, taking a deep breath, I mentioned it would be best to love the person she would feel most comfortable having sex with. Her eyes widened. “SEX?” she asked incredibly, with great disgust. “I never want to have sex with ANYONE!” Too funny! I really jumped the gun!

Despite my desire to buy her flip-flops with bows on them, I really WOULD have accepted her decision to wear work boots, or even to have her doctor sew a penis on her if she was truly transgendered. I have survived my life by learning not to get upset over such matters; it wouldn’t change anything and would only draw us apart, possibly ruining our relationship for years to come. I love my daughter too much and will support whatever adult decision she makes. When she is older and still finding her way in the world, she won’t remember the shoes she wore at graduation. But she will remember my unconditional love and support. What more could a parent ask for?

 

I Know Why My Family Had To Travel

I had always hated driving, which may have something to do with the fact that I traveled cross-country for most of my childhood years. My life lately includes a lot of it, with a granddaughter in Northern Massachusetts and a daughter attending school in Hartford. Surprisingly, I have learned to enjoy it! I find myself bopping away to music, using my right arm as a conductor’s baton, (one, two, three, four; the movements from music class carefully ingrained into me.) Worse yet, one can find me huskily singing along with great enthusiasm.

Taking non-highway routes as my father always did, the variations of scenery are fascinating. Children play on swings, grandmother sitting nearby, and clothes swing on a clothesline; do they use an old wood stove for cooking? Do they have an “icebox” instead of a refrigerator? Have I crossed over into the Twilight Zone? I remember driving through the same scenes as a child.

Many of the houses are memorable. One with natural wood and white shutters has a toddler standing in the window, waving, green curtains framing her. It is only after a few trips that I realize that that same child is always in the same position, waving, but wearing different clothing. It is not a child at all, but a doll that is lovingly cared for and placed in a prominent spot for all to see. Another red shuttered house has a flag waving on the front porch, a decoration to herald in the seasons and special occasions. With St. Patrick’s Day done and over, a Welcome Spring now blows in the wind. Driving, I take stock of such silly things as how much wood is piled in front of the lumber factory. (During the winter, the pile has diminished.) I was excited to drive by the nursery this spring.  During the winter after the holidays, it had withering Christmas Trees and wreaths, and was a  stark and unwelcome place. (The owners were probably enjoying sunny Florida.) Now, it is abloom with colors, flowers blazing in the sunlight, sunflowers winking at me, mums in pots and rose bushes awaiting planting.  Such a joyful place to drive by.

It was only as an adult that I realized that my dad and our family traveled so much because of his severe posttraumatic stress from the war. We criss-crossed the country, driving on the back roads. Driving hypnotized him into peace, keeping the awful memories at bay while experiencing the delightful ones of finding new places and exploring the many geographical areas of the country.

Driving the back roads has become more important to me now. No flash of highway exits and speeding cars, but leisurely driving through the countryside, relaxing my thoughts. Often, when observing the bright blue sky and puffy white clouds, the bright yellow sun will make its way down as a brilliant stream of light, and tears will inexplicably sting my eyes. Pure peace and joy. I have finally been able to fully understand the importance of traveling.

 

 

Please consider purchasing my book, The Apple Tree:  Raising 5 Kids with Disabilities and Remaining Sane.

Thank you for the support!

 

 

 

Here a Friend, There a Happiness

 

My daughter, Marie, was severely abused as a toddler and young child. She came to live with us at the age of 7 after being found wandering the streets barefoot at 2 am carrying her infant brother looking for formula for him. The effects of the abuse were immediately apparent. She couldn’t stand to be touched, and would cower under the table if she felt threatened. She was angry all of the time and refused all attempts at affection. (When she was with us for a few years, she finally allowed me to give her a “fist bump” as a way of showing my love for her, a love she certainly did not reciprocate because she didn’t know what love was.)

Posttraumatic stress episodes were explosive and frequent, and required restraints and hospitalization. She had superhuman strength while in the throws of PTSD, as I am sure the EMTs and firemen who came to transport her to the hospital can attest. She turned into a super kicking, screaming, biting and hitting machine, and it was amazingly frightening to see.   If put in clothe restraints, she would eat through the cloth like a ravenous wolf. The adult restraints were too large and a smaller hole would have to be cut to fit her slim wrists and ankles. She learned to bite the inside of her mouth to spit blood and they tried to put a mask on her, which she immediately sucked into her mouth and gagged on. At the hospital, she would get a shot of Haldol, go into a trance, and wake up questioning what happened. With her hands still restrained and unable to sign regularly, her little fingers would finger spell “Where am I? Why?”

The number of PTSD episodes have subsided to once every 6 months or so. She has learned to love and be loved by her family, and, fortunately, she is making tremendous progress. Marie is going to be 20 years old this month and still attending a specialized school where she can remain until she is 21.

Marie, citing her age that she is an adult, has come more into her own. On her own, she got a tattoo of a dolphin on the inside of her wrist. She loves dolphins since swimming with them at Discovery Cove on her 12^th birthday. By choosing that particular tattoo, she reasoned she could look at the dolphin every time she gets upset and it would remind her of a happy time instead of the times she was abused. Like other young adults, she has colored her hair a mixture of blue and blonde, has a lip ring and likes to pick out her own clothes. Her newest adult adventure is finding a girlfriend; recently reconnecting with an amazing girl a few years older than her with whom she attended school many years ago. They have started hanging out and Marie is giddy with excitement. (Marie has never had a real friend of any kind before.)

Yesterday the 3 of us went to Dave and Buster’s at the mall. While Marie LOVES to play the games, sometimes the crowds overwhelm her and she gets anxious, moody and socially unresponsive. Her sweet friend, who does not know the extent of Marie’s early childhood abuse, kept asking her why she was mad at her, which eventually turned into a full blown argument in the car. By the time we got home, her friend was no longer talking to her and said she was never coming to see Marie again. Marie went down and sat on the wall overlooking the lake, her head drooping down. She texted me on her phone, “Help Me”. Joining her on the wall, I noticed she was crying, something I have never seen Marie do. The tears spilled out of her eyes and were running down her cheeks like an ever-flowing fountain. Her mouth was quivering and her sad eyes said it all. I hugged her and the tears turned more torrential. After a while she signed to me “She thinks I’m mad at her and that I have an attitude. I don’t know how to tell her.” Meaning she didn’t know how to tell her about her abuse and that sometimes it still affects the way she acts. She didn’t know how to tell her how much she loved her as a friend, her FIRST friend, and she didn’t want to hurt her, but sometimes she couldn’t control her emotions. She asked me to come with her to talk to her friend to help her explain.

Her friend was annoyed. Marie began about her family history and her friend said that SHE, too, had a mother addicted to drugs and that SHE, too, had been adopted. She said she learned to just “get over it” and why couldn’t Marie? With this criticism, Marie ran from the room and back to the wall by the lake. I explained that Marie had an extremely traumatic childhood, far and above just her mom doing drugs. I explained the hurt, the hospitalizations, and the challenging life she has endured. Her friend’s angry face softened with understanding. As I was talking, a tear slipped down her cheek and she got up and went down to the wall by the lake. When I looked out the window, they were both hugging and laughing.

I pray that Marie’s friend will continue to be her friend and accept her with all of her emotional baggage. It would take an amazing friend to do that, and I have a feeling she IS that amazing!

The Words Every Adoptive Mom Longs to Hear…

Like most other adoptive parents, I adopted children because I, selfishly, wanted children. (My theory was if I had children to care for, I really didn’t have a lot of extra time to clean the house. I would rather care for a child than mop the floor…) An adoptive parent should never think their child who is adopted is beholden to them. The child didn’t choose to be born into their circumstances, and they certainly didn’t ask to be adopted. And I have had more than my share of emotionally unstable children, (aren’t all teenagers unstable anyway?) and never expected them to be happy about my choice to adopt them, (or at least not to express that feeling.)

But I was wrong. I went to Marie’s award ceremony at school today. Most parents didn’t go, it was during the day and I’m sure it was hard for them to get off work. It was hard for me to get off work, too, and I will have to work on the weekend to make up for it, but I went because I wanted to support Marie, who had been doing phenomenally in school. Marie didn’t know I was coming, and she was sooooooooo excited! She ran over, gave me a big, wet, on the lips kiss, and put her head on my shoulder while she hugged me tightly. She was genuinely happy to see me, (and not just because she knew I would take her out for ice cream after the ceremony.) She dragged me to all of her friends, and announced to them in American Sign Language something that made my heart stop and tears come to my eyes. She said, “This is my mom. She wasn’t my real mom when she adopted me when I was 7 years old, and at first I didn’t like her, but she made me feel safe and she gave me food and clothes. Now I love her very much and she is my real mom because now I have a happy life and I know I will have a happy future. And someday I will have babies and make her a grandmother!” I am her mom, indeed!

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To read about our traumatic early years together, please purchase my book, The Apple Tree: Raising 5 Kids with Disabilities and Remaining Sane on Amazon.

“If You Look for the Goodness in Your Children, Good Things Will Happen”

My dear friends and readers,

Please excuse this commercial interruption of your regular reading.

If you enjoy reading my blog, you will LOVE reading my book!

The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane
Authored by Linda Petersen

(Review by Dawn Raffel from Readers Digest:)
Her story begins not with her children but with her own childhood spent traveling the country in the backseat of her parents’ car (her perpetually restless dad had post-traumatic stress disorder from WWII), often with very little money and few provisions. Where someone else might have seen deprivation and isolation, Petersen viewed her unusual childhood with a sense of wonder and gratitude. After marrying young and giving birth to a son who was legally blind (and who went on to earn a PhD on full scholarship), Petersen and her husband adopted four more special needs children and fostered many others. Each child has their own special story about overcoming tremendous physical and emotional difficulties in order to be able to succeed and enjoy life. Her honesty, wit, and terrific storytelling make this a book you want to read rather than one you feel you should read.

The link to the book:
https://www.createspace.com/5321986?ref=1147694&utm_id=6026

Thanks sooooo much! Happy reading!

To Be Joyful with So Little

When Dinora and I visited her birth place, Guatemala, we spent some time with moms who were working picking coffee beans. They toil all day while their children play nearby. Prepared for this visit, Dinora had a backpack full of little toys; small dolls, Matchbox cars, bouncy balls, toy rings, and so forth. (Above is a picture of a little girl clutching a small ring in her hand, so pleased with her gift.) The children were amazingly polite. Each child would gather around Dinora as she gave them each a small toy. Taking it delightfully appreciative into their little hands, they smiled shyly and stepped back to leave room for others to come forward. They didn’t crowd her. They didn’t ask for more, more, more. They reveled in the joy of that tiny toy! Sheer happiness!

It made me realize that more and expensive and better isn’t the right Christmas concept for children as they may not fully appreciate their multitude of blessings. If only they could experience the happiness on Christmas that those children among the coffee bean trees exhibited. Pure joy! What a concept!

A Whole New Meaning to “Swimming with the Fishes”

                                    

 

I have been fortunate in that my mother loved to travel and she often took me and one of my kiddos “along for the ride.”  One of my favorite spots was Discovery Cove, part of Sea World in Orlando.  Discovery Cove offered a make believe coral reef with lots of beautiful fish swimming around and huge stingrays that would swim close and touch you. It was so amazing, and was as close to real snorkeling that I had ever been. With a life jacket, snorkel and mask on, Marie, (my 13 year old daughter who is profoundly deaf and has PTSD) and I spent the day swimming around, amazed at the many varieties of tropical fish. It was like being in another world.  In one spot, there was a glass wall and you could swim next to sharks.  Up until this point in my life, this was as close to real snorkeling, and SHARKS, that I would get! It was awesome!

Near the end of the day, Marie’s medication began to wear off as we had stayed later than I anticipated.  She began to get anxious, but she didn’t want to leave.   I told her one more swim around the coral reef and then we’d head back to the hotel.  As had been happening all day, a stingray came up and touched Marie on her leg.  In fact, she had been petting them for most of the day, calling them her “friends”.  For some reason, this touch was different than the rest.  She became frightened and had a full blown panic attack.  She started SCREAMING her high pitched scream and she was signing (in American sign language,) “The fish is going to eat me!” (Why the fish would think she were any tastier later in the day than earlier, I don’t understand.) To get away from the stingray, she climbed onto my back.  I tried to calm her down, but it was difficult to do sign language while trying to swim with a child on your back, and she was screaming so loud her eyes were shut and she couldn’t see what I was saying anyway!  By this time, we were halfway around the coral reef and as far from the shore as you could possibly get.  Marie decided she was not safe enough on my back because her toes were still in the water,  so she climbed up on my shoulders to get completely out of the water!  Unfortunately, that meant I’d have to sink UNDER the water for her to stay OUT of it.  I started screaming along with her.  (Albeit alternating choking with water and screaming.) She was truly frightened the fish was going to eat her and I was truly frightened I was going to drowned.

They have several life guards there and our dilemma was not hard to miss, with Marie standing upright and me bobbing in and out of the water choking. Because we were so far out, it took the lifeguards what seemed like an eternity to reach us.  When they got to us, Marie refused to let the lifeguards touch her, screaming and kicking at them.  (Good old Post Traumatic Stress Disorder shows up when you least expect it!)  What three of the lifeguards ended up doing was supporting me in the water while she continued to stand on my shoulders and scream. Of course there was a huge crowd of onlookers on the beach, some taking photos.  (We really were quite a sight!) Once on the beach both Marie and I collapsed into the sand.  The life guards asked if we needed to go to the hospital, but I was still breathing and Marie had stopped screaming and was crying quietly, so that meant we had both survived unscathed.  Well, maybe not totally unscathed, I’ve lost my wanderlust  for snorkeling!

 

If you are interested in reading more, I have written an e-book entitled The Apple Tree:  Raising 5 Kids with Disabilities and Remaining Sane  available at I-Books, Amazon, and Barnes and Noble.

I’ve Never Been So Happy to be Sick!!!!

Just like everyone else’s, my life sucks from time to time! This past month has been one catastrophe after another. Marie, my daughter who is deaf, had again been hospitalized due to a dangerous PTSD episode. When in a dissociative state, she downed staples in an effort to kill herself. Ever the optimist, I was hoping against hope that her memories of severe abuse would begin to soften, maybe even heal. Alas, not yet…this will be a lifelong battle.

My son Angel, who had just begun to drive, was involved in a rear end collision. While slowing down for a red light, KAPOWEE! another car hit him in the rear, pushing him into the truck in front of him. He was briefly hospitalized for whiplash, but the emotional impact was even worse. Sleeping is a luxury he no longer enjoys; wild fears and thoughts flood his already befuddled mind. He has stopped doing the things he used to do, clearly depressed that his means of freedom no longer sits in the driveway. Through no fault of his own, his major pride and joy, his ability to drive around and help others all day, has been destroyed. The car, safe and well running, was bought new in 2008. The insurance company only paid the Blue Book value of $4200. Because we do not have additional financial means, trying to find a car for such a small amount of money has been a real challenge, and every day that goes by without a car for Angel pushes him further and further into depression.

Marie’s recent birthday party was ruined when Steven “acted up”…having a full fledge outburst. (He has a severe sensory deficit with which he can not tolerate crowds or things not in his regular schedule. I should have had the foresight to arrange for him to be elsewhere.) Steven punched a hole in the wall and swore obscene obscene obscenities, (I know most obscene obscenities, but he came up with a few that were even more hard core.) As he stormed off down the street to settle himself down, the damage had already been done. Mortified at this behavior that most of our guests had never seen, everyone left, making a bee line for their cars, children in tow. Marie, who in her deafness had not heard the commotion, had been fishing on the dock behind our house. When she turned around, everyone was gone! She was quizzical at first, but not being a real “people person”, she took it in stride, especially because everyone had left their gifts for her!

My own work has been more difficult. The agency has hired a public relations person, and suddenly referrals have been flooding in. With an exponentially increased workload, putting in 50 hours a week has not been uncommon. What HAS been uncommon is the wrenching ache that developed in the pit of my stomach. Food would spew out of my stomach a half hour after I’d eaten. I felt awful, but I trekked on, saltine crackers and ginger ale bottle in tow. All my life, stress did not bother me. I could handle anything! No problem! Que sera sera! A little stress was not going to deter me from my job duties! (Like a mailman, neither ran, nor snow nor dark of night would keep me from my mission.) But as the stomach ache dragged on, my enthusiasm waned. I actually became depressed! My life, as I knew it, was over… or so I thought…..

After two weeks of eating nothing but chicken rice soup and saltines, I dragged my depressed little body to the walk in clinic. Taking one look at me, they sent me to the hospital emergency room where an intravenous was started to alleviate my dehydration. Laying there, I watched several bags of liquid force fed into the little vein in my hand. They did many tests, some to which I may have objected but I was too weak to stand my ground. Lo and behold, I was really sick! It wasn’t stress! It was salmonella poisoning from an egg breakfast at a local diner two weeks previously! Although I lay there on the gurney still feeling ill, happiness filled my heart. I was sick, not stressed! Life would return to “normal”, including all of the small tragedies and heartbreaks and problems associated with having five children with disabilities. But I could handle it! Life would go on!