Good Luck or Bad Luck Can Be in the Perception

My father was an artist/architect/carver.  He designed beautiful buildings that to this day are still city centerpieces, painted flattering portraits that still hang proudly in people’s homes, and carved a large variety of creative items.  His favorite, and my mom’s least favorite, was a statue of a Tiki god.  A squat, dark man with wild pointy hair, red eyes and a huge, pure white, toothy grin that was almost as big as the body itself.  My mother said it looked evil and it gave her the creeps.  My dad proudly sat it on the fireplace mantel “for good luck”, he said.

Shortly after he placed the statue there, he fell down the basement stairs and broke his leg badly in three places.  He recuperated slowly, but managed to get back to work.  Because he had just returned to work, he ignored stomach pains because he was trying to get caught up on a project.  He finally had to be rushed to the hospital and almost died because his appendix had burst and he had become septic. Whether he was going to live was up in the air for days.

He finally recuperated and returned home from the hospital, although he was still not entirely healed.  He had to get up every few hours to take pain pills.  Late one night when he got up to take medication, he found the kitchen of the house engulfed in flames!  He woke everyone up and managed to scoop my brother out of his bedroom next to the kitchen before the flames reached him.

The fire trucks arrived quickly and more than 1/2 of the house was damaged.  The house was burnt from the back bathroom, the laundry room, the kitchen, my brother’s bedroom, and all the way down the hallway up to the mantle of the fireplace in the living room where the fire damage had stopped.  After the firemen put the fire out and surveyed the severe smoke damage, they were struck by one oddity…the smile of the Tiki god was glowing bright white.  Everything around it was burnt or blackened by smoke, but the statue appeared to be untouched!

Our local newspaper did an article on this phenomenon and we were local celebrities for our 15 minutes of fame.   My mother insisted the Tiki statue was bad luck.  My father fell down the stairs and broke his leg.  His appendix had burst and he’d almost died.  And 1/2 the house burned down!  My father had another take on the situation.  The Tiki god was GOOD luck.  When he’d fallen down the stairs, he could have broken his neck instead of his leg.  When his appendix had burst, he could have gotten to the hospital too late and died.  And if his appendix had not burst, he would not have gotten up in the middle of the night to get medication and the whole house, including his family, could have burned!

The statue remained a fixture in my parent’s house as long as my father lived.  When he passed away ten years ago, my mom got rid of the statue, or so I thought…

Some of you may know that I have been dealing with the recent death of my mother. Cleaning out her house these past few weeks have been the saddest thing I’ve ever done in my entire life.  How does one begin to decide what to keep, what to give away and what to throw away?  Cleaning the kitchen I found the grinder she used to make bologna salad with.  Cleaning the bedrooms I  tenderly sorted through pictures, mementos, costume jewelry and I not so tenderly threw away her clothes that had become threadbare and worn.

I had managed to finish cleaning most of the house except for the basement.  I put that off until last.  In a family like ours without any wealth in “things”, I could only expect to find in the basement “memories” not worth keeping, but too sad to throw away.  All of the old Christmas decorations, the threadbare sheets, blankets, chenille bedspreads and curtains that my mother thought might “come in handy one day”, old televisions with rabbit ear antennas,  8 track tape recorders, posters from the 60s that had faded and crumbled with the moisture,  and a whole lot of other worthless “junk” that would cause me further sadness.  I was dreading cleaning it out!  As a working mother with kiddos who I have to drive back and forth to doctor appointments, soccer practice, friend’s houses and such, I did not really have the extra time I needed to devote to this depressing task.  Plus, I hated cleaning my OWN house and I resented the fact that this task lay ahead of me.

At work my husband called me frantic!  The water heater had burst in my mother’s basement and there was 2 inches of water everyplace!!!  I had no time to be bothered with yet another unpleasant task, I thought as I left work early to take care of the situation.  As I opened my mother’s basement door, I could hear the water gushing, and see items floating freely in the water.  “UGH!!!!”  I thought, as I started to cry, overwhelmed by the task ahead of me.  Now I not only had to clean, but I had to mop up the mess! When I got to the bottom of the stairs, I surveyed the damage…everything was dank, dripping wet and depressing.  Then, a familiar face smiled out at me through the dampness…the Tiki statue!  It was up on a shelf on a wall way across the room, but even through the darkness I could still see its smile!  I stopped crying in amazement.  It made me think.  I finally realized that this was NOT bad luck, as my mother would have said, but GOOD luck, as my father would have said.  With my mom’s basement flooded, her homeowner’s insurance company would pay to have it cleaned up!  I called them and they sent over a cleaning crew right away. With everything ruined, it would have to be thrown away, not by ME, but by the company which would haul it all away.  Suddenly the dismal vision of me standing in a foot of water and bagging after bag after bag of old, wet memories disappeared, replaced with a sense of giddiness! I don’t know why, but just the fact that this huge daunting task of cleaning her basement had been taken care of by this flood lightened my mood. Isn’t life strange?

Although some of our old stuff MAY have been salvageable, I knew it would just sit in my basement and become more junk for me, so I asked the clean up crew to clean it entirely because everything was “moldy from the water. They went in and scooped everything away and cleaned the basement spotlessly!  The thing I saved from the basement was the Tiki god.  Not that I “believe” in him, but I believe that sometimes luck is all in how incidents are perceived, and life is a whole lot less stressful if you can look at the lucky side of things!  I know my spirits were lifted that day…

Who Cares What I Look Like…I Saved Money…

Okay, I am officially “crazy”.  I know that is not a politically correct term, but yesterday I did something so obsessive that I realized for the first time in my life that something is seriously wrong with me…I bought make-up that did not match my skin color BECAUSE IT WAS ON SALE!!!!!!

I have always been a “frugal” person, coming from a long line of “frugal” relatives.  (Alright, actually only one, my dad, but he goes way back to my childhood so it is considered a long line to me.) My father was so “frugal” that is retrospect I realize he obviously had obsessive compulsive disorder.  Although we were a middle class family, we NEVER went out to eat.  (Well, there was that ONE TIME we did go out to an ice cream restaurant on their 25^th anniversary, but other than that we did not eat at restaurants.)  He did not want to spend money on heat, so we used a wood stove. (We live in NEW ENGLANG!)  He did allow us to have electric blankets, but we could only turn it on to warm the bed, shutting it off when we went to bed.  So, I’d fall asleep all warm and cozy with happy dreams and wake up in the middle of the night dreaming of Antarctica. He also did not want to spend money on hot water, so he devised a type of solar hot water heater by threading water pipes on the roof and then into an unplugged water heater.  If it was a very sunny day, we could have a warm bath at night, but only once a week because he didn’t want to waste water.  We were fortunately to live on a lake so I did a lot of swimming to get clean.

We ate only what was inexpensive and on sale:  lots of rice, pasta, mashed potatoes and canned vegetables.  Not so much fresh vegetables, fruit or meat.  My father was not a vegetarian because of moral concerns, but because of the cost of meat.

For the beginning of school in September, I would be able to choose 2 outfits at the nearest discount store.  I would wear them alternate days during the week…all year! If I happened to grow during the year, (as of course often happened,) they would get a little tight.  Fortunately, my mother planned for this by buying them extra big at the beginning of the school year! She loved buying her and my father’s clothes and shoes at the Salvation Army.  In fact, everyone got a good laugh at my wedding when my mom came up and knelt down for communion and there was $1.99 written in black marker on the bottom of her shoe.  (You’ve GOT to laugh at stuff like that…)

My mother would cut my hair, usually crooked. When I became a teenager,  I tried to let it grown. I put it up in a “bun” like Audrey Hepburn in “Breakfast at Tiffany’s”, but it was so thin and uncontrollable that I usually ended up looking like Pebbles from the Flintstones!

We did go to the drive-in every Friday, and I was allowed the 25 cents to get popcorn, which was a huge treat for me.  During those days, you had to pay per person for the drive-in.  My father had me scrunch down low in the back seat so they would think I was under 12.  One day, when I was about 15, the person in the admission booth questioned my father about my age.  Because he would never LIE, he told them I was 15 but that he would not pay for me, and what difference did it make if he paid for 2 or 3 because they would still get some money.  The man in the admission booth dug in his heels…and so did my father.  To my huge embarrassment, my father made the long line of cars behind him waiting to pay BACK UP so that he could leave.  That was the last time we went to the drive-in.

Of all of the effects of economic frugality, the biggest one was that I never got a real Barbie doll.  I yearned for a Barbie doll!  I asked for one for birthdays and Christmas, but I always got the cheap plastic imitation Barbie dolls.  When I went to play with friends, they would take pity on me and let me play with their Midge doll, (Barbie’s “friend”,) but it was never the same as playing with my own real live Barbie. I think it is ironic that this is the one memory that has caused permanent harm to my psyche!

In retrospect, except for the doll, I did not know anything different.  I did not feel cheated or poor or economically deprived.  I learned to live with what I had and be happy. From an early age, probably because I had a brother who was severely disabled, I was empathetic with people with disabilities.  Although I did not see many children with physical disabilities in those days, there were many developmentally delayed students in the schools.  I would go out of my way to be friendly and helpful.  I had little tolerance for ignorant people who would fun of these valuable human beings, and I was known for my protective nature. I was fortunate to have had many friends in school.  They were not necessarily the most popular or the most fashionably dressed friends, but they were down to earth, friendly, and they appreciated their friendship with me. I was confident with myself, and I thought nothing of going up to a bully and telling them to stop picking on someone. Just like that, I’d have a new friend!  Sometimes I’d even make friends with the bully! I had a great time in school! My values were vastly different than other teenagers. This difference actually led into what I think is my best quality, the unwavering caring and acceptance of others.  Without this trait, I would not have become a social worker, and I certainly would not have adopted 4 children with disabilities!

Although one would expect I would rebel in the other direction, the one thing that could not help but rub off on me is frugality.  I started working at the age of 14 and paid 1/2 of my pay to my parents as room and board, (of COURSE.)  I finally had some disposable income and you would have thought I would spend it on clothes, haircuts and such.  NO.  I was a compulsive saver.  I saved to buy my own car at the age of 16 and I saved enough to pay for college at the age of 18. I am definitely not as frugal as my father, (who, by the way, died and left my mother with several hundred thousand dollars with which she happily used for the next ten years to travel to exotic locales.)  I do, however, get a big thrill buying things on sale with deep discounts!  I’m the type who would go to JC Penny’s or Macy’s and buy the seasonal items on sale at 80% off with an additional 20% off coupon.  Who can resist shirts for $3 or pants for $5?  I clothe my 5 children in this manner, always buying the year before for clothes they would need the next year.  Once, when a local department store went out of business, they were selling children’s clothing for 50 cents each. Who could turn THAT down?????  I bought 4 RACKS of clothing!  Fortunately, I was in the process of adopting our daughter from Guatemala, so my mother and I stuffed all of the clothing in 8 large suitcases which we took with us to Guatemala.  We each put our own clothes into backpacks which we carried.  The orphanage which had so tenderly cared for my daughter was thrilled to get such an assortment of new clothes.  The director actually cried because she said all they ever got were dirty and ripped hand me downs.

I no longer do the grocery shopping in my house because, like my father, I would only by items which were deeply on sale.  My husband is not a canned vegetable kind of guy.  In fact, I was lucky enough to marry a cook, so he does all of his own shopping, regularly visiting the local farm for fresh produce or the local meat market for fresh meat or fish.  My cupboards and refrigerator are always full of great food and I never have to worry about how much it cost!

Which brings me back to my drugstore sojourn yesterday when, browsing the aisles, I noticed that some of the make-up items were 75% off.  (PLUS I had a $5 off coupon for the store!  What could be better?)  I picked out the marked-down items and proudly brought them to the register.  I was happy!  I was frugal!  I was an idiot!  When I got the items home and tried to use them, I was horrified to learn I had bought powdered make-up such an ugly color that when I put it on I looked like I had pancake make-up on my face. (I’m not talking about pancake make-up they were in the movies, I’m talking about make-up that actually looked like I was wearing pancake flour on my face!)  I tried the blush and it was so red that my cheeks looked like a clown.  The lipstick was brown.  (UGH!)  The mascara was not waterproof, (something I HATE because by night time I being to look like a raccoon.)  And WHY hadn’t I noticed that the nail polish was green???  For the first time in my life I looked at my white powdered, red cheeked, brown lipped self in the mirror and I thought “I am officially crazy!”  Oh, well, its a good thing that I think I am pretty on the INSIDE!

Angels Among Us

My mother passed away about two months ago and it has taken me this long to write about it.  She was the most wonderful mother in the whole world, (and I am not just saying that because that is what one is expected to say about their deceased mother.)  In addition to being kind and loving, she was also very spiritual.

I remember when I was four years old and we lived in Opalaka, Florida, right behind the Hialeah Race Track.  We had a cement swimming pool in the backyard which my father built, and next to it was a palm tree my mother had planted crooked so it was growing sideways.  I had a green parakeet whose name I certainly don’t remember, and I loved watching Howdy Doody and Captain Kangaroo on our little black and white tv with the rabbit ears antenna.  My brother was born one day in March, and life suddenly changed for our family.  My brother was born with serious disabilities due to Rubella Syndrome, (supposedly my mother had been exposed to someone with German Measles.)  With a cleft palate, he could not nurse or drink from a bottle, so he was fed by a large eye dropper. He could not such on a pacifier and he cried constantly.  He was blind and deaf and was obviously going to be severely developmentally delayed. My joyful childhood was suddenly overshadowed by a sadness of which I had never seen from my mother.  I would witness her throw herself across her bed and sob. A deep sadness enveloped our family. I looked at my little brother, who looked so innocent and little to cause such a fuss.

One day, when the sun was shining brightly and Curtis was asleep, my mother called to me to come sit in the rocking chair with her.  She squeezed me and held onto me tightly, rocking  and crying.  It was a different kind of crying, though.  A happy cry, if I could describe it as such.  From that day on, the gloom lifted from our house and I went back to living my happy childhood with my new baby brother.

Many years later, when I was a young teenager, my mother shared her experience of what happened to her that very day.  The doctors had been encouraging her to put my brother “away”, institutionalize him as was the custom in those days. “Forget about him,” they said, “You can have another child.”  She could not bear to make the thought of doing this.  Then, on that sunny day while rocking in her chair, she told me she was visited by an Angel, a beautiful, bright white Angel.  She told me she could feel the weight of the Angel’s hand on her shoulder, reassuring her that everything was going to be okay.  Although the Angel did not speak, she knew what the message was.  She did not have to worry anymore, her son would be fine, and he was.  He wasn’t fine in that he suddenly became perfectly healthy, but he was fine in that he has led a happy, fulfilling life. Clearly, she had been touched by something spiritual on that day to turn her torrents of tears into smiles of joy over her new baby.

Several years later, while camping high in the mountains, my mother woke up from her sleep and sat up in her sleeping bag.  She was joyous!  She told me she had been to see God, whom she described as a bright and beautiful. She said it felt real, not like a dream at all.  She was confused as to the experience because it seemed as though she was there to help a friend pass over into heaven.  She did not understand because of course her friend was healthy.  It was not until we returned home from vacation that she learned that this friend had died from a brain aneurysm on that very night at that very time.

My mother lived a life of  great happiness and contentment, always seeing the good in people.  Near the end, right before she died, I stayed with her 24 hours a day.  When we knew death was near, the nurses let me lie in bed with her and she passed away in my arms.  I don’t know what I expected when she died.  No…that’s not true…I expected to see some of what she had experienced!  I expected to see her pass into heaven!  I expected there to be some reaction from her body, some knowledge that her lifetime of spirituality would somehow, through osmosis, pass through to me.  But there was nothing.  She just stopped breathing. And there was nothing.

It took me a while to accept her death, and I became angry that there was no sign from God that she was with him.  Realistically I knew this was silly, but I was hugely disappointed.

Christmas time came soon afterwards.  As the parent of 5 children, I had this habit when the children were younger of taking a picture of their sleeping faces on Christmas eve.  As they aged, they hated the existence of these pictures!  (They were usually sucking on a “binky” at the time and girlfriends and boyfriends who saw the pictures in old photo albums would always go “Awwwwwwwwwwww, how CUTE,” the most mortifying thing that could happen to a teenage macho boy!)  This Christmas eve, filled with nostalgia, emptiness and sadness,  I again went into each of their bedrooms and gazed at their sleeping faces.  I was suddenly filled with a great sense of purpose and contentment, much like the type of contentment my mother might have felt when she felt the Angel’s hand upon her shoulder.  These were MY Angels.  These were my children who had endured so much when younger, either with their disabilities or with indescribable child abuse. They have not only survived, but they have THRIVED.  They are happy and loving and successful and they have bright futures as adults.  This is miraculous to me!

A Whole New Meaning to Swimming With the Fishes

I have been fortunate in that my mother loved to travel and she often took me and one of my kiddos “along for the ride.”  One of my favorite spots was Discovery Cove, part of Sea World in Orlando.  Discovery Cove offered a make believe coral reef with lots of beautiful fish swimming around and huge stingrays that would swim close and touch you. It was so amazing, and was as close to real snorkeling that I had ever been. With a life jacket, snorkel and mask on, Marie, (my 13 year old daughter who is profoundly deaf and has PTSD) and I spent the day swimming around, amazed at the many varieties of tropical fish. It was like being in another world.  In one spot, there was a glass wall and you could swim next to sharks.  Up until this point in my life, this was as close to real snorkeling, and SHARKS, that I would get! It was awesome!

Near the end of the day, Marie’s medication began to wear off as we had stayed later than I anticipated.  She began to get anxious, but she didn’t want to leave.   I told her one more swim around the coral reef and then we’d head back to the hotel.  As had been happening all day, a stingray came up and touched Marie on her leg.  In fact, she had been petting them for most of the day, calling them her “friends”.  For some reason, this touch was different than the rest.  She became frightened and had a full blown panic attack.  She started SCREAMING her high pitched scream and she was signing (in American sign language,) “The fish is going to eat me!” (Why the fish would think she were any tastier later in the day than earlier, I don’t understand.) To get away from the stingray, she climbed onto my back.  I tried to calm her down, but it was difficult to do sign language while trying to swim with a child on your back, and she was screaming so loud her eyes were shut and she couldn’t see what I was saying anyway!  By this time, we were halfway around the coral reef and as far from the shore as you could possibly get.  Marie decided she was not safe enough on my back because her toes were still in the water,  so she climbed up on my shoulders to get completely out of the water!  Unfortunately, that meant I’d have to sink UNDER the water for her to stay OUT of it.  I started screaming along with her.  (Albeit alternating choking with water and screaming.) She was truly frightened the fish was going to eat her and I was truly frightened I was going to drowned.

They have several life guards there and our dilemma was not hard to miss, with Marie standing upright and me bobbing in and out of the water choking. Because we were so far out, it took the lifeguards what seemed like an eternity to reach us.  When they got to us, Marie refused to let the lifeguards touch her, screaming and kicking at them.  (Good old Post Traumatic Stress Disorder shows up when you least expect it!)  What three of the lifeguards ended up doing was supporting me in the water while she continued to stand on my shoulders and scream. Of course there was a huge crowd of onlookers on the beach, some taking photos.  (We really were quite a sight!) Once on the beach both Marie and I collapsed into the sand.  The life guards asked if we needed to go to the hospital, but I was still breathing and Marie had stopped screaming and was crying quietly, so that meant we had both survived unscathed.  Well, maybe not totally unscathed, I’ve lost my wanderlust  for snorkeling!

Global Warming?

I completely understand why older people move to southern states when they retire. Winters are COLD!  My fingers get chilled just thinking about it.

I do not enjoy the winters as I used to.  I remember pre-children when my husband and I would go skiing.  One day it was 10 degrees below zero. We were all excited it was so cold because that meant that the ski slopes would not be as crowded and we would not have to wait in line for the chairlift.  We bundled up with layer upon layer of warm clothing and we skied all day.  At one point, we stopped at the top of the mountain and we could see all around the surrounding area.  With the sun blazing down on the shiny snow, we saw snowcapped mountains in the distance, little villages, frozen lakes and the ant specks that were cars, and I was overcome with awe for God and nature.  It’s a good thing this memory is still crisp in my mind because these days, you’d never get me on top of a cold, frigid mountain again!

The children, of course, have always loved winter.  My oldest son, Francis, still skies with his father from time to time, plus he skies with friends in the mountains of California.  Although he is legally blind, he is a ” black diamond slope” skier.  The only problem with that is he needs a “black diamond slope” guide!  My heart was always in my throat when he skied because I was petrified he’d hit a tree.  (This was during the time when Sonny Bono and one the Kennedy boys died after hitting a tree when skiing.)  While away at college in England, he regularly skied in the French Alps.  Knowing how frightened I am, he sent a picture of him at the top of the mountain.  “You’d love this, mom” he wrote, “No trees.”  I pictured him happily skiing down the bare mountain not a tree in sight to run into.  It wasn’t until much later that someone broke my happy bubble by informing me that he could be buried by an AVALANCHE!  Boy, this being a mom is tough!

My husband received an old snowmobile as a “gift” from a friend.  One day, he was riding it in our large backyard with my son Steven sitting in the front of him and he decided to let him drive.  Excitedly, Steven turned the handlebars to give it gas.  The snowmobile took off in a lurch and my husband was thrown from the back of it in an amazing double somersault.  Steven and the snowmobile were headed right for the shed.  His life flashed before my eyes and I thought “This is what it feels like to see your child die.”   Fortunately, unbeknownst to me, if you let up on the handlebars, the machine stops, and this is exactly what Steven did.  He turned around and noticed his father was missing and he let go of the handlebars.  He stopped within a foot of the shed. It took a while for my heart to start beating again. My husband did the only smart thing a father could do…he sold that snowmobile and he bought 2 news ones so we could go snowmobiling as a family!  I had to go along as a driver in order for the whole family to participate. If you have not ridden a snowmobile, I can only describe it as riding a motorcycle on skis.  I had never ridden a motorcycle and I was very nervous. I would creep along at 5-10 miles per hour, much to my husband’s dismay.  To make matters worse, my husband did not choose the nice, empty, safe fields to ride in.  NOOOOOO!  He chose the skinny, trees whipping by your head, narrow snowmobile paths with TRAFFIC COMING IN THE OTHER DIRECTION!  That one day of snowmobiling was the scariest in my life.  There was no turning back and I had to drive.  My hands were shaking, my body was sweating even though it was freezing out, and my imagination had my head being whipped off by a tree branch.  That was the first and last time for me!  My son Angel was riding with me, and he and I decided we liked to go shopping much more than snowmobiling and everyone was happier with this decision.

About 16 years ago, when it became obvious that Steven had some type of Autism and could not tolerate vacations in hotels, we bought a little house in New Hampshire for vacations.  The children always loved playing outside in the snow.  At the end of our driveway was an 8 foot tall pile of snow made by the snowplow which the kids had fun sliding down.  At one point, Steven climbed to the top of the pile and all of a sudden he disappeared!  He had fallen deep into the snow pile! Another heart stopping moment for me.  Fortunately, we managed to pull the snow from around the top of the pile until he could climb out.  He was laughing because it was so much fun and he wanted to do it again.

At home, we live on a lake.  My 13 year old daughter who is deaf loves playing outside in the cold.  She loves to go ice fishing, building snowmen, and, most of all, playing hockey.  She dresses warmly from head to toe…black snow pants, black jacket, a hat which covers most of her face, several pairs of gloves topped with hockey gloves, and boys hockey skates.  She takes her hockey stick and skates around the lake to the various hockey games trying to get an invitation to play.  From looking at her all bundled up, you cannot tell if she is a girl or a boy.  She is not verbal, so they cannot tell from her voice.  (She points to her ears for them to know she is deaf.)  She would normally use sign language but with hockey gloves this is next to impossible.  She is a good player and that is all that matters, and she invariably plays for hours. If one group stops playing, she will skate around and find another group.  She reminds me of a female Batman for hockey…slinking into games, her identity unknown…showing up out of the blue when a team needs a player!

Winter is alive and well with my kiddos, who enjoy it as I did when I was a child, but now I am old and get chilled easily..  If they want me, I’ll be sitting by the fireplace drinking hot chocolate and watching tv, often a show with a discussion about global warming.

In the Beginning…

Raising 5 Kids With Disabilities and Remaining Sane Blog My name is Lindsey Petersen and I am the proud mother of five wonderful, very interesting children. They also happen to have disabilities, but these have not been overwhelming obstacles. My oldest son, Francis, is legally blind and has obsessive compulsive disorder. In this blog  I recount several humorous stories of his upbringing, including his fear of skunks. (He was petrified he would step on a skunk he didn’t see and it would spray him! He HATED tomatoes and the thought of having to take a bath in tomato juice was horrifying to him!) He managed to graduate college and obtained a full scholarship to Cambridge University in England to obtain his Ph.D. He has since become Dr. Scooter, (his nickname from college, named after Scooter from the Muppet Babies). He has obtained his dream job at an unbelievable salary! My 25- year-old daughter, adopted from Guatemala, has struggled with post-traumatic stress disorder, attention deficit disorder and anxiety disorder. She came to us profoundly deaf, but was “healed.” (Read all about it in my blog!) She obtained her college degree in International Business and also has a job in her field. (Miracle of Miracles!) My 18-year-old son has a long history of autism, obsessive compulsive disorder, attention deficit hyperactivity disorder, and a severe sensory integration disorder. It really doesn’t matter what his disability is diagnosed as, I only know he was born cocaine and heroin addicted to an alcoholic mother, and his nervous system is wired haphazardly! He has managed to utilize his obsessions with reptiles into a volunteer position at a reptile educational facility. He is the one standing in the doorway at the entrance to the facility holding the 6-foot long boa constrictor, or the alligator, or the large lizard. He is not good with people, but great with reptiles! He has also recently become trained as an “alligator wrangler” for their alligator shows. (Really!) My 15-year-old son was severely abused prior to coming to live with us at the age of four. He developed dissociative identity disorder, (multiple personality disorder.) Life with this disorder is every day life for him. He and his “peeps”, (his name for his personalities,) live an interesting, eventful and sometimes very frustrating life, (like when one studies for the social studies test and another one takes it and flunks!) My 13-year-old daughter who is profoundly deaf came to live with us at the age of seven when the police found her wandering the streets carrying her infant brother looking for food. She was supposed to be a short-term placement placed with us because I know sign language. (I’m sure many foster parents have heard this spiel about a short-term placement.) Six years later she is still with us, adopted at the age of ten. Her deafness is not a disability, but her post-traumatic stress from early abuse and her attention deficit hyperactivity disorder have caused serious problems for her. I am also the loving sister to a brother who is severely developmentally delayed, legally blind and deaf due to rubella syndrome. He also unfortunately developed schizophrenia when he was eighteen years old. While my children’s disabilities would not normally be considered amusing situations, I try to look at them in an upbeat, positive, and sometimes humorous manner. I am a happy and optimistic person by nature, and to dwell on their problems would make me sad, a feeling not in my repertoire. I began writing this blog in August because I was looking for a stress reliever. It is amazing how cathartic it is to vent one’s frustrations in writing! Also, I have had so many unique experiences and adventures that many acquaintances have suggested I write a book. I started writing the blog not so much with the thought of writing a book, but with the thought of putting down these events for posterity, so to speak, and to share my experiences with others. In the process, I’ve reduced my stress level and I have been encouraged by the more 2500 people who have read the blog. I am sure our adventures and misadventures will continue. (My daughter who is deaf and has sensory issues and cannot stand tags in her clothes has entered junior high school and started wearing a bra! My son with autism has started to notice girls. Unfortunately for him, girls are usually not very approachable when one is carrying a large snake! My son who has dissociative identity disorder, with the assistance of a specialized psychologist, is searching into the deep recesses of his mind to discover the abuse, which led to his disability.) Thanks for joining me.  It’s nice to know someone “out there” is listening!

The Dance of the Snake Goddesses

A very conservative lawyer friend had a very conservative lawyer wife who had taken up belly dancing.  She and 2 friends were so skilled in this talent that they were chosen to be performers for a large audience for First Night, the annual New Year’s Eve celebration in the city.  For an added “twist” to their act, my lawyer friend asked if his wife could borrow one of my son’s 5 foot long boa constrictors for their dance.  I had plenty of reservations, but I said okay. (It is always good to keep a lawyer friend happy because you never know when you will need a lawyer’s help.)  The ladies came to our house, and practiced with the snake while my son, Steven, who is very familiar with snakes, supervised.  The practice went very well, and the ladies excitedly decided to bill their act as the “The Dance of the Snake Goddesses.”

Well, New Year’s Eve came and I reminded Steven that we had to take the snake to the performance hall for the act.  Steven, who has Asperger’s and an anxiety disorder, was mortified!  There was no way HE was going to go to a large hall where there were a lot of people!  He handed me a pillowcase to put the snake in, and a bottle of alcohol “in case it bit someone”. He promptly took off on his bike peddling away to destinations unknown to me, (but far away from  First Night appearance.)  I started to panic!  These excited dancers were billed as the “The Dance of the Snake Goddesses” and they would have no snake!  Feeling extremely obligated to provide them with a snake, I decided to bring the it myself.  I had not minded the snakes when they were locked in the glass tanks, but somehow I was going to have to get up the nerve to actually take the snake out and put it in the pillowcase.  My hands were shaking as I undid the lock and took the cover off of the tank.   It looked docile enough, just lying there.  I reached in and managed to push it into the pillowcase using a long sleeved pot holder, proud of myself for not having to touch it.  Maybe I’d be okay! I tentatively carried the pillowcase to the living room, but I had miscalculated by not securing the top of it.  The snake’s head popped out, I pushed it back down.  It popped out again, and I pushed it down again.  This time it was stronger and its head came our farther.  When I tried to push it back in, it wiggle away from me and the whole snake came slithering out of the bag, which I promptly dropped.  There, on the floor of our living room, was a slithering 5 foot long snake!  I screamed.  My husband came to see what was going on, and he jumped up on the couch and screamed.  Even though I was shaking and my first instinct was to smash the thing over the head with a broom, I remembered  my commitment to our lawyer friends.  I gathered up my courage and, using the broom gently, I nudged it back into the pillowcase, this time immediately tying the top into a knot.

I was still shaking from this experience as I drove to the city with the wriggling pillowcase on the seat next to me.  I was feeling tremendous relief that I had at least caught it and was on my way to the performance. I even felt a little sorry for it, and turned the heat all the way up in my car so it could be warm.  (It had started to snow outside, which would mean there would be a larger than usual audience for an inside performance as the outside First Night performances would involved standing around in wet snow.  Great!  A bigger audience for what was sure to be a Snake Goddess fiasco!)

When we got near the theater, I put the pillowcase inside my coat to keep it warm. (MY I was brave!)  There was a line around the building waiting to see the performance.  I went to the head of the line, and quietly said to the guard at the door, “I have the snake for the performance.”  In his loudest voice, he parted the crowd by saying “Make way for the snake handler.  Make way for the snake handler!”  I wanted to hide!  As a 55 year old shaking, nervous, dowdy woman, I no more resembled a snake handler than a chipmunk would resemble Santa Clause.

I managed to get back stage with the snake and the belly dancers were very excited.  They carefully took him (her?  I couldn’t tell the difference,) out of the bag and began to practice.  By now I was shaking so badly that my stomach was in knots.  I was holding the bottle of alcohol (“in case it bit someone”.)  I was on the verge of tears, both from relief that I’d delivered the snake in one piece, but also fear that it would bite and there would be blood and screams and lawsuits.

The audience in the large theater was packed, standing room only.  The music for the dancers began.  They dramatically began the act hidden behind veils, with the snake on one woman with the head at one hand, draped across her back, and the tail on the other hand.  They did a dramatic dance, dropping the veils at different intervals for the audience to get a glimpse of the snake.  I could hear  “ooooh”  and “aaaaaah” from the audience.  I was hoping the snake wasn’t going to slither down and into the audience causing mass panic,  emptying the audience out into the street, or, worse yet, go around biting audience members with me following along with my bottle of alcohol. (Then I’d really need a lawyer for the lawsuits!)

Then something strange happened. The dancers dropped their veils, and the snake actually seemed to join in the dance.  Soon its head was wriggling in time to the music, its tail was swaying around, and it seemed to be having a grand old time!  It began to slither in time to the music (a pure coincidence I’m sure,) from one dancer to the next.  It was an amazing sight, the graceful gyrating dancers and the graceful gyrating snake, all moving in time to the music.  Mesmerizing. Amazing.  The act finished to a standing ovation, and darn it if it didn’t seem as though the snake bowed his head in response to the clapping from the audience.

After the show, the dancers gave the snake a few affectionate pats and back into the pillowcase it went.  I tied it in a knot, put it under my coat, and carried it back to the car.  I felt as though I was going to cry, but this time it was tears of relief.  I don’t know how I get myself into these situations, but, again, I’d come through it unscathed, with a little more respect for the reptile in the pillowcase next to me!

Different Children/Different Adoption Experience

I was in family court today  and while I waited my turn for my case to be called I sat there on a cold metal bench watching people around me.  In the far corner was a group of family members there to celebrate the adoption of the most adorable blonde haired, blue eyed girl, dressed in a red velvet dress with a white lace top and red bows in her hair.  There were at least 10 family members and a professional photographer.  They were called into the courtroom first, as usually happens with the adoptions.  They came out ten minutes later, the new mother crying, the new father proudly carrying his official new daughter.  The family members were joyously hugging and congratulating them, which was completely incongruous to the rest of the mopey general public, myself included, waiting to be heard in court.  (Not too many people smile or dress elegantly when waiting for court, and the judges and social workers all have their own private room so they don’t have to mingle with the rest of us!)  Anyway, it reminded me of the 4 very different adoption courtroom experiences I’ve had with my children.

The one that comes closest to the scene I’d witnessed was when we adopted Dinora from Guatemala.  Adopted at the age of 12 months, I did dress her is a frilly dress with a bow in her hair.  Our 3 year old son came along dressed in a little vest and tie, and my husband and I proudly carried our children into court for our little one to become an official member of the family.  We did not think to bring other family members around, (just as I did not want any other family members around when I giving birth, I guess!)  We did take a few pictures, and then we all went out to Chuck E Cheese’s for pizza to celebrate.   It was a lovely adoption!  What a great experience!

Our third child, Steven, we had had since birth.  I took him home from the hospital when he was one month old. They had trouble placing him because he had been born heroin and cocaine addicted to an alcoholic birth mother and anyone with any experience with these children know what serious difficulties they can have.  Due to his exposure to drugs and alcohol,  his brain appeared to be wired wrong, (my “formal” diagnosis.) He had excessive sensory integration deficit whereby he would scream if you touched him gently, or if there was a tag on his clothes, or it the tv was too loud, or if the room was too bright, and so forth.  Plus, by the age of 2 he was super active and never slept.  Joy!  Joy!  Nothing, however, could dim our love for him and we wanted to adopted him. (What held it up for several years was a reported birth father, in prison for life for murder, who would not release his custody.  The funny thing was, Steven’s birth mom was Caucasian, light colored hair, blue eyes.  His reported birth father was a red headed, blue eyed Irishman.  Steven was obviously bi-racial with his dark skin and gorgeous curly black hair.  Even though one might entertain the idea that it WAS theoretically  possible that these two people could produce a child with Steven’s characteristics, the fact that the reported birth father was in prison when Steven was conceived should have given a clue that he was grasping at straws to obtain custody. Finally, after a forced court ordered DNA test, it was determined he was not the father and Steven was free for adoption.  Our loving son could become a permanent family member!)   His adoption courtroom experience was very memorable, but all for the wrong reasons.  He was almost 4 and wild, wild, wild.  He was taking Ritalin, which just took the “edge” off.  He still had his sensory issues, and wearing clothes was a real challenge for him.  During the adoption proceedings, I sat Steven on my lap, but he wriggled and cried and tried to get free.  “Let him DOWN”, the judge said sweetly, and who can argue with a judge?  So I let him down.  He proceeded to run around in front of us and strip off his clothes piece by piece.  The judge started talking faster and faster, trying to hurry the adoption process along.  Steven finally was naked and he started to climb up the wood in front of the judge, just as the judge finalized the adoption.  “Good luck,” the judge said to us, “I think you are going to need it!”

The adoption of our son Angel was semi-sweet.  He loved to dress up, so he was wearing a suit and tie.  The court had combined his adoption with the adoption of his five brothers and sisters who were being adopted by their aunt.  The children were removed from their birth mother when Angel was born as he was also born to an alcoholic birth mother who was addicted to heroin and cocaine.  The aunt agreed to adopt his siblings because they already had a family relationship, but Angel was a stranger to them all.  His aunt, only twenty-eight years old herself, had five children of her own.  They lived in the poorest part of town in a small apartment that could not rationally hold eleven people. She did not have a car,so we picked them all up to take them to the courthouse for the adoption.  They were dressed in clean but tattered clothes.  It was obvious that this mother was going to struggle with these children as several of the older, teenage ones were already showing signs of delinquency.  The adoption process went smoothly in court, and we dropped them off at their home with a hope that things would work out.  Then we happily went home to celebrate with Angel.  Another family outing to Chuck E Cheese’s for pizza! (Angel has kept in touch with his siblings, whose adoption has since been rescinded by the adoptive mother.  Two of his brothers are in prison, one in the training school for boys, one sister had died and the other sister has lived with several different foster families.)

Marie’s adoption was our final adoption.  She had come to us as a foster child at the age of seven, having been picked up in the city streets at 4:00 am carrying her infant brother trying to find food for him.  At her tender age, she had been the caretaker of this infant because her birth mother was incompetent and spent her nights out doing drugs of hooking up with guys.  Marie was devastated when she and her brother were separated, and she worried and cried for months that he was going to die because she wasn’t there to take care of him.  At the adoption proceedings, as in Angel’s case, her brother was to be adopted at the same time she was.  By this time he was about four years old.  When she saw him in the courtroom lobby she joyfully ran up to him to pick him up.  He started to cry!  He didn’t know who she was!  His new adoptive mother held him and calmed down, but every time Marie came near him he’d start to cry again.  Marie was devastated and tearful the whole time. The joy of her adoption was overshadowed by her sadness that the infant she had raised did not know who she was.  (She managed to recover somewhat, however.  After the proceedings, they let us go up and take a picture of the judge. In every picture, Marie snuck in “bunny ears” fingers over the judge’s head.  So much for a memorable adoption picture!)

I would have to say that no two adoption courtroom proceedings are exactly alike. The only thing that is alike in all of them is a deep love of the adoptive parents for their new child/children.  For me, in each case, it matched the love I experienced during the birth of my first child.  That is a joyful thing!

Stress Busters…

Thoughts on things I do to reduce stress and remain sane while raising 5 children with disabilities:

Ø    I buy each person in my family their own brand of socks.  That way, matching them and giving them to the proper person is easy. Also, if the dryer eats a sock, there is always another one to match the spare.

Ø    My children have always had a 9:00 pm bedtime.  They don’t need to actually go to bed, but they need to stay in their rooms and read, watch television, chat on their cell phones or whatever.  This gives my husband and me a couple of hours of “quiet time” and also calms the children down before they fall asleep.

Ø    Every evening, during this time, I try to take a bubble bath.  I have a nice, icy glass of Diet Coke, read a magazine, (I have to much going on in my brain to read a book and remember it from night to night,) and wash with strongly scented body wash.  The scent really cheers me up!  If I feel really decadent, I will light scented candles.

Ø    I work.  I love my job. I get to talk to adults about current events and it gives me a solid foundation to “carry on” otherwise.

Ø    I schedule doctor, dentist and counseling appointments in the late afternoon, evening or on a Saturday so I do not have to take time out of work.   There are plenty of doctors, dentists and counselors who have evening and weekend hours.

Ø    I find places to take the kids where they can have fun, but that fun is contained.  They love the local dog park where they can cuddle and play with neighborhood dogs.  We go to a small local beach where they pick shells, catch sand crabs, and sometimes even go in the water.  We often go to movies such as “Shrek”, “Ice Age”, “Madagascar”  “Up” and so forth.  There is plenty of adult humor in these movies and I am generally the one laughing the loudest.  We go to a clay studio where the children get to make and paint a piece of clay. (My daughter has done so many wonderful dishes that she will have a whole collection for when she sets up housekeeping!)  We regularly visit the neighborhood pool where the children love to swim and the ice rink where they love to skate.  These are both great self-contained areas where the children can be as active as they want and I can sit on the sidelines and wave.

Ø    I find places to eat where the kids can play and I can visit with a friend.  I do not have much extra time for a social life, so meeting friends for dinner is important.  We regularly eat at a restaurant that has a pool table and air hockey for the kids to play while I get to sit and chat.  Being with friends regenerates my batteries.

Ø    As I am often in the emergency room with one or other of my children, I have a “hospital bag” packed, not unlike the bag packed by expectant mothers.  In it I have several magazines for myself and my child,  several dollars in change for the soda machine, and a deck of playing cards to play with my child during the long waits for treatment.  I also bring an extra dose of any medication they are on.  Heaven help everyone if his/her Ritalin or Concerta  wears off while waiting in the hospital. I learned to do this after several hospital rooms were in danger of being destroyed and my child was placed in restraints because they could not control themselves.  (I, too, think the oxygen hoses, the emergency buttons and the many containers of medical supplies are interesting, but I am physically able to refrain from playing with them and throwing them around the examining room! My children not so much…)

Ø    I get plenty of sleep.  If I don’t get enough sleep I am too crabby to face the day!  I am also “low maintenance” in that I dress comfortably not stylishly, I wear minimal make-up, and I have an easy hairstyle.  I may not be the most elegant mom around, but I can get ready for anything in ten minutes!

Ø    I am a “relaxed housekeeper”, to put it mildly.  My house is generally picked up, but heavier housework is not “my thing”.  I would much rather be off at the dog park with my children than sitting home washing the floor.  I do not think that when I die I will say “Oh, I wish I’d kept a cleaner house.”

O I listen to books on CD in the car.  It takes my mind off of things and I can be entertained.

O     I eat.  Yes, eating is bad for you, but I eat things like Cheerios and string cheese. They keep my mouth and hands busy and satisfies my craving to stuff something in my mouth!

O I do not take things too seriously.  Shit happens.  Move on.

Ø    I write this blog.  Writing has always been an interest of mine, and by writing this blog, I am able to take some of life’s daily stressors and bang them out on the poor computer keyboard.  Thanks for reading this and giving me an excuse to write!!!!!

THE ABCs of ADHD

I’ve read the articles and books on ADHD.  I know the discipline methods, rewards and time outs, the methods of Ross Green (from The Explosive Child) and the medications that work best.  But I also know the realities of ADHD, having 2 children with ADHD and 2 with ADD.  In real life terms, the ABCs of ADHD/ADD are:

Attention! Always on alert for dangerous situations due to impulsive behaviors, such as running across streets without looking, grabbing a butcher knife to cut the end off a banana, running up the down escalator, and grabbing the dog or any other animal roughly and the dog (or other animal) retaliating by biting (or scratching.)

“Be careful!  Be careful!  Be careful” is the parent mantra.

Climbing climbing climbing:  out of the crib at age 15 months, out of the bedroom window when a teenager, on rock walls and curbstones and couches.

Don’t touch that!  Don’t do that! Don’t hit her!  Don’t pull that!  Don’t eat that! Don’t hurt it!  Don’t break it!

Exhausted parents trying their best to keep up.

Friendships are difficult.

Go!  Go!  Go! They’re always on the go!

Helpless parents, unable to control their child’s behavior, especially embarrassing in the grocery store under the staring eyes of others, judging them.

If only he’d…    If only she’d….  Parents dream for a different lifestyle.

Jumping Bean:  he goes here and there from friend to friend to friend, never staying long enough to establish a real friendship.

Kitchen walls are written on, bathroom doors have holes kicked in, curtains are ripped, bedrooms are messy.

LOVE.  Parents give unconditional love, but the behavior doesn’t change because the  ADHD remains…

MEDICATION!  MEDICATION!  MEDICATION! Alleluia when it works!!!!

Not paying attention in school so schoolwork suffers: not paying attention for homework, so it’s a nightly fight: not paying attention to other’s feelings, so no friendships are formed.

Overload happens easily and tantrums result. Keep it quiet.  Keep it simple.  Keep it under stimulated for peace.

Psychiatrists are our best friends!

Questions!  Questions from them all the time! Especially hard to escape when you are stuck riding in the car together.

Rewards for good behaviors; stickers, ice cream, Playstation, tv.

Self-esteem is low, parent  and teacher patience is limited so he’s always the troublemaker and never measures up.

Time-outs in the seat till we’re blue in the face.  All the time spent in time-outs would add up to a year in the life.

Understanding is needed from parents, family, friends and teachers; understanding is often in short supply.

Very draining on all, child and adults.

Whining, whining, whining until their parent’s ears hurt.

X-rays, CAT Scans and emergency room visits:  active behavior results in injuries.

YIKES! What has he done NOW?!?!

Zest for life would be a polite way of putting it…